Last reply 2 months ago
New person around.

Hello. Just to be friendly. I was diagnosed in 2009 and have gone from walking,to a cane, to a walker to a wheelchair. I have chronic spasams ( which equals to pain) I have learned the hard way that you have to be an advocate for yourself, or doctors will steamroll over you.
After two different hospitals and four different MS doctors I was fed up, but now I have a great MS doctor and a good general practitioner. It just took me ten years to get things right . I am 44and live in Central Kentucky. I now have Primary Progress Relapsing MS. I’ve been through the wringer! as I am sure a bunch of people have too. That’s it for now.

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stumbler
2 months ago

Hi @kevinkincaid and welcome.

We all go through that voyage of discovery to advocacy. It’s such a bonus to have resources such as this Forum, to share advice and experience.

I wish there had been such a resource when I started my MS journey. I’m sure I could have navigated a lot better than I did…………


merfield
2 months ago

Likewise @kevinkincaid. I’m in a wh/ch too with ppMS and getting spasms, mainly in the mornings. It’s a bugger but we just have to get on with it and go with the flow. It could be worse – we could be like this AND be refugees!!


jamoranto
2 months ago

@merfield

Refugees, What’s that all about?


merfield
2 months ago

@jamoranto….. it’s about it could be worse: we could be seeking refuge from flooding, a tsunami, hurricane, war, or earthquake – those people have it really rough. Although I’m ppMS in a wh/ch, I’ve got a roof over my head. I imagine you have too xx


kevinkincaid
2 months ago

You art correct! Found out one of my favorite grade school friends that I have reconnected with is filled with cancer. He has already been through chemo and radiation once, and said he isn’t going to do it again. I can’t blame him. He would just keep.gping through it until he passed anyway. It’s Qualify of Life ,he is looking for.


kevinkincaid
2 months ago

I hope I am doing this correctly. By friend requests,it has Delete ,but then there is a dot right next to it. Does the dot confirm friends?


rogersouthall
2 months ago

Kevinkincaid glad to see you hopefully have turned a corner, life has a way of making you appreciate the things and people around us, you are on that path, good luck. I loved your part of the State when I lived there, I have happy memories, a country to enjoy
http://www.wholesorts.com is my monthly blog and a way to write all that is good and bad about life, its amazing when you look back that life is actually not too bad, take care and remember, this site is always here


rmdaniels
2 months ago

Good morning friendly @kevinkincaid
I’m also in the US & glad to “meet” you. Enjoy your day!


kevinkincaid
2 months ago

@rmdaniels Thanks. Hope you have a great day!


kevinkincaid
2 months ago

@rmdaniels Thanks. Hope you have a great day!

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