Would love some help and advice, especially from anyone living in Staffordshire, about their MS nurse services.
My wife got officially diagnosed with, and I quote, very active RRMS a month ago and during the diagnosis with the consultant there was an MS nurse present who said she would be seeing my wife in a couple of weeks for her initial assessment for treatment. That was a month ago and we’ve heard nothing. No letter, phone call, email, nothing. We’ve tried calling and emailing but no response and now I feel my wife’s condition is getting worse. In the last 24 hours her speech has worsened and her face has dropped on one side (the same symptoms as the first relapse that started all this)
We feel completely let down by the NHS at a point where we need them the most, especially as this is all new to us. It’s almost like they gone “here’s what’s wrong with you now **** off”
My only thought is that we go to PALS for advice but in the short term would love some soothing voices while I lie wide awake at 3:30am.
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