@anonymous 

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anonymous

Lemtrada and Ocrevus - for RMS

Hi All Just wondering if anyone has taken lemtrada and post 20 months ( 2016 first infusion) after the first infusion your neurologist suggest you to take Ocrevus. As most of you who have taken lemtrada as time passes my walking deteriorated. I can just get around still drive but very minimal movement. I also had issues with my thyroid and fast forward to April this year I had to remove my thyroid completely. I saw my neurologist yesterday and he suggested another shot of lemtrada but I refused too and then he suggested Ocrevus. My walking has deteriorated even more from removing my thyroid. I go for a MRI this week and wait for the results. No matter what the results state he still wants to go through with ocrevus. I was diagnosed in 2013 and haven’t had any attacks or new leisions. Last years mri stated my lesions were decreasing in size, which was awesome. I am so confused as I thought what I am experiencing is the recovery of lemtrada and as time passes it may improve, well fingers cross. Has Anyone taken ocrevus who has been on lemtrada??? Don’t know what to do. Prior to lemtrada I was so fit moving around running.. this last year has been a nightmare and I am too afraid to take anything.
@seanachai

Suggest you consider a new Neuro if financially possible... Failing that ask why is Ocrevus any different than Rituxan and if not (not proven), why offer you a 20 yr old therapy... BTW if Lemtrada has not worked, why are you not looking at HSCT ?

@anonymous

@seanachi I live in Australia and joined this group to see if I can get some info on Ocrevus and people who are on it. This drug has just been approved in Australia. From what I gather anyone who has had side effects from lemtrada they r offering Ocrevus. I am worried if I do consider taking this drug, is my walking going to deteriorate even more, putting me in a wheelchair. Yes HSTC is an option but not right at this moment in my life as I will need to go to Russia for treatment.