@wobblesh 

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wobblesh

Isolating effects of MS

Hi there, I have just joined the site and wish I had found it sooner. What a relief it would have been to chat to other MS'ers from the time of my diagnosis. I have been lucky with mild symptoms (RRMS) up until three years or so ago. Since then I have deteriorated and had a relapse last year, still getting back up to strength, but have found one of the hardest things to cope with is the isolation. Most of my friends want to socialise over a drink or at a fitness event, neither of which I am able to fully participate in, I'll go but leave early and risk looking unsociable, but I have come to accept my limits. How do others feel about trying to fit in to social norms with MS. and how have you found ways to enjoy socialising without compromising?
@PeterFrancis

Hi@wobblesh I was diagnosed with SPMS almost a year ago now and yes Isolation plays a huge part in my day to day life. I have only left the house to attend appointments and such, I am waiting on an Electric Wheelchair which will give me back some of the freedom I've been missing over the last year or so. I only have a small circle of Friends and they are busy living their lives, no social events / occasions have happened as far as I'm aware, perhaps I was not informed of any intentionally, who knows?. Do I care?.... In a word no. I have far too much going on with myself and my new friend SPMS to honestly give a hoot about who is shagging who etc, etc, etc. When I'm ready, willing and able to do so, I'll venture out.

@Vixen

Hello @wobblesh. I only got diagnosed last year and was lucky I found Shift quite soon after, and it was a Godsend. Actually, there is a monthly meet up at Southbank Centre that you might want to consider. I have become much more of a home lover since diagnosis. I am still working OK but I do find social settings give me a bit of anxiety. You’re right. MS can be totally isolating, even when you’re with loved ones. I’m glad you’ve found Shift. The search box above is invaluable if you want to look for previous posts on random things. The map function will also let you see if there is anyone in your local area. Take care x