I know you cannot give medical advice, but I would just ask if you could be so kind in commenting on my symptoms based on your understanding of MS.
I am a 41 male, and for about 9 months now I have been feeling limb stiffness. It started with my left thumb and with a burning sensation in my left forearm, which lasted for about 2 days and happened just once. Aside from that initial sensation that quickly resolved, all my symptoms were always stiffness mainly.
From the left thumb the stiffness progressively spread to my hands, forearms and feet, and lower legs. I feel no pain, weakness or numbness. I don’t feel pins and needles or cramps either. Just this permanent weird sensation of stiffness, and sometimes very subtle sensations of electric currents and very subtle twitches, both which are barely noticeable. What is very noticeable is the limb stiffness. Some days better than others but stiffness is always present.
I describe it as if my hands, feet, lower legs and forearms were covered by saran wrap, not impairing my skin sensations but impairing the perceived liberty of movement by maybe 10-30%, which enough to make me feel quite stiff and almost semi-paralysed.
I first assumed it was too much stress and been mostly house-bound and bed-bound, with some regular walks on the treadmill for the last 9 months trying to give myself a chance to recover. However, the problem doesn’t show signs of improvement, by the contrary. The stiffness seems to be here to stay and it’s getting more impairing month after month.
I have done a brain MRI, about 5 months ago which was clear, and I am considering doing a spine MRI next. Since clear exams might not rule-out MS, I’ve been avoiding doing them, as I have to pay for them out-of-pocket, and I’m not sure whether MS can manifest like this, but I can’t live like this and think will move ahead with the tests despite the exams sensitivity and specificity uncertainties.
I understand that MS symptom spectrum is very vast and MS can manifest itself in a myriad of ways, so I guess this can clearly be undiagnosed MS at this stage.
Nevertheless, I would like to ask for your opinions, in case someone can relate, Specifically, if you had similar symptoms before your diagnosis and how were you diagnosed and what was your progress like and what treatment path have you followed.
I speculate that considering the progressive nature of my symptoms, that this is PPMS, which tends to affect male more than women, and that is more often associated with MRI lesions in the spine (which I haven’t checked yet) rather than in the brain (where I was clear 5 months ago).
But meanwhile, would just like to ask if anyone can relate or what are the thoughts of the most senior community members, who must have seen this happening before.
Thank you for your support
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