@MSMPT69 

Last reply

MSMPT69

I am getting so frustrated.

So, diagnosis started last year and I was recently admitted to Queens Square and discharged on 4th March with a diagnosis of RRMS. I was discharged with a letter saying that I would be seen within a follow up clinic within 6 weeks. I have just been told that my follow up appointment will be on the 11th June which is actually 14 WEEKS later!! This appointment will be to discuss DMT's and where we might go with treatment but the problem I have is that the longer it takes then the more I question DMT's and the potential side effects. At the moment I am relatively well and continuing to work full time and lead a generally normal life and what I don't understand is whether I should be taking a DMT whilst I am well and whether this is likely to prevent further deterioration or whether I can wait until I am unwell and then start taking the DMT. I will obviously ask my specialist this but the wait is very frustrating and just leads to me questioning everything!
@Highlander

@mthorn Hi welcome to the club. I can only speak for myself in this instance but I'm sure there will be a few others that will agree.. I had symptoms of ms years ago but kinda brushed them off as just the usual ailments people have as they get older, I worked and was extremely fit. So fit doctor's just used to tell me I had a virus or pulled a muscle when I very rarely go to see them. Fast forward to know... I can hardly walk or even talk. Had I got a diagnosis many years ago and been given the option of meds I'd chew their arms off to have them. I might still be able to walk and talk. I didn't have the same opportunity as you have now. But the choice is yours at the end off the day. That's just my opinion... Hind sight is a wonderful curse at times.

@MSMPT69

Hi Highlander Thank you for this. It is exactly the kind of response I was looking for. If I know that the DMT's might give me a prolonged period of improved mobility/general healthy then it probably helps in convincing me more that anything else.