Last reply 7 months ago
Hi … i need some advice

Hi My Name is Tony , i am 59 and have been recently been diagnosed with MS progressive – having lived and travelled for 30 years with MS relapse/remission.
I am currently working , but it is a very long day and quite intensive and so i am now considering what options are open to me .
What i need help with is to understand what kind of financial help is out there if any, should i decide to stop full time working ? My wife is in all essence looking after me when it comes to organizing all my physio/treatments and making sure that i know when all my hospital appointments are ,plus stepping in when i need to rest .The major issue as we all know is that MS is so mysterious in how it affects every individual that we are having to plan now for the worst case scenario – we will be moving home so i don’t have to contend with stairs anymore , which is very upsetting enough especially for my wife . However i am also now at the crossroads of what to do next work wise – i want to spend quality time with my wife but understand about stopping work too early could not be the right thing either – Please help !

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8 months ago

@tonysibbo , you really need some financial advice from someone who can review what assets you have available, pension options, liabilities, etc.

I would suggest an appointment with your Bank to discuss financial options.

Then go to the Citizens Advice Bureau (CAB) to see what benefits that you may be entitled to. Carer’s Allowance is a possibility for your wife and maybe Personal Independence Payment (PIP) for you.

CAB are best placed to advise on the possibilities of means-tested benefits.

8 months ago

Thank you — very good advice -ill make the appointment with the bank tomorrow

8 months ago

Hello @tonysibbo. I have only been diagosed a few years and have just gone part time, which is ace! I have yet to find any compensatory benefit and was rejected by PiP. But, being 50 something like you, have done a creative down size, down work, different city move to restructure. Sometimes we have to think outside the box a bit, planning for our Autumn, if you know what I mean! 🙂

8 months ago

Hi ive retired myself after 29 + years of physical type of work i applied for social security thats what i live on !!! Its a blessing i found a place cheaper living so i can stay and afford !!! MS is not fun take good care slow is good !!!

7 months ago

Thank you for the advice …

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