Easiest employment options
Hi, I've read through quite a few posts talking work but I think that asking my question and getting some advice will be best this way. I had Lemtrada infusion June 2017 & June 2018.
I worked for a company for 13 years. This was great as I worked from my computer at home so when I was diagnosed with MS I could still manage my job easily. (website development/management/admin) Unexpected in November 2017 I was made redundant.
I spent ages job hunting anything I could manage. I got job as midday supervisor at local primary school. I soon found children did not respect me and I was never up to date with changes and it was hard work for little ££ being only 1 hour a day so searched again.
I got new job last October as a fundraiser for a charity. It's Wednesday-Saturday so 4 days a week. I travel to different venues each shift, carry then setup a table, posted and material then fundraise 7 hours. I can need to drive anything from 20 miles to 50 miles to venue then again to get home so it's often another 2 - 3 hours on my fundraising time so I'm pushing myself.
It's now caught me out & I've been off work since 17th January. GP doesn't understand & is grumpy giving me sick note. I did call my neurology team & the MS nurse saw me. Blood tests Tec don't show any problems so it's just MS. She said may be my job isn't the one for me so I may need to change.
There's nothing else or easier options in the company so I've been searching jobs. I have applied for 6 other jobs but I'm getting a no thanks or no reply. GP told her receptionist the note she does for me today is the last then she'll need to see me. I don't know how long this note will cover yet but I do know seeing me won't help her see fatigue & neurological pain.
Any work ideas please?
Hi @norfolkgal , long time, no see. So, how have you been after two rounds of Lemtrada? I must admit, I do admire your perseverance to obtain an income in any way you can, trying your hand at other things. Ideally, you need a position similar to your old job, i.e. web development at home. That would hopefully provide a better financial return, without the stress and hassle of a commute. Have you considered freelance or contracting? It's a shame that your Doctor isn't a bit more empathetic. Perhaps you could get your MS Nurse to liaise with Dr. Grumpy, to explain the situation?
Hi @Stumler. I thought you'd be first to reply to me as I remember how helpful you've been with any questions I've had in the past. It's been a long time but I've still been around a bit, just more on Facebook & not logged in when here 😯 On thought I've been on with Lemtrada, my Neuro team are amazed when each month blood test says I'm ok & I've caught nothing with such a low immune system. With current fatigue etc many others on Lemtrada said it sounds Thyroid which is a known side effect but its been tested & ok. When made redundant I did contact all competitors with a letter & my C.V but no answer or told to keep watch on their LinkedIn. I know I was very lucky working at home with going nowhere at all & good salary.....it seems there's nothing like it. I did debate freelance but on looking again I didn't think I'd cope with what was needed for each one I found. Main jobs around now seem to be carer or cleaners, I could probably do both but again I'd be pushing myself & end up worse off like I have this time. I did tell MS nurse about grumpy GP, she tested what they didn't & said she can't do note for work, consultant busy & GP my primary care so they should. I had monthly blood test this morning so called MS nurse. Left answer phone message saying blood test done, still struggling so asked GP for another sick note. I was told it will be done but don't know how long for & GP will want to see me before issuing another but GP can't see or understand fatigue, weakness & neuropathic pain