Last reply 2 years ago
Constipation

Hello,

Constipation does any else have this problem?
I am newly diagnosed to Ms in March this year.

I now can not open my bowels without using laxatives,

I can only take them once a week as l need to be near a bathroom at all times, this means l need to spend the day in bed to avoid accidents.
If l don’t take laxatives l can not open my bowels at all. I have a very health diet, drink lots of water etc.

My Ms Nurse said if my bowels are full this could be causing the pain in my back.
My neurologist knows l have to take laxatives to open my bowels.
I don’t know if it is worth to ask to be referred to a bowel specialist?
Not sure if they could help though.

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stumbler
2 years ago

@keels , is there anything here that could possibly help:-

https://www.mstrust.org.uk/a-z/bowel-incontinence ?


vixen
2 years ago

Hi there, I’m in my first year too; sounds like you’ve got a positive attitude. My truth is, that I’ve been able to make positive changes in my life that I would not have been equipped to do had I not had he diagnosis. Like you (from your profile), living the simple life becomes really important. I’ve not had issues as severe as yours seem to be. However, I’ve discovered that it’s not just our minds, it’s our bodies that need to adjust to this diagnosis too. Maybe your body is acting in a very defensive, shut down way. This is a horrible time for you – but it will get better. You might have to take the bull by the horns, call your MS nurse and indicate that you just cannot cope, as it seems to me that you are far from living an ‘ordinary’ life at the moment. Stay strong, keep posting and let us know how you’re going x


jasfromtas
2 years ago

Not sure where you are and if they are available, but I go to a continence clinic (they do bladder and bowels), and they have nurses, medical, nutritionalists as well. I’ve had problems with both for a while and have found these people really brilliant.
From what I understand being consistant (daily) and not having a ‘boom and bust’ (their term) bowel thing is key. Can take a wile to work out what works for you but it is possible.


keels
2 years ago

Thank you everyone who has responded back to me.

I wasn’t expecting that many replies to be honest as aware is probably not a topic everyone likes to talk about.

I am due for the Ms Nurse to call be back re my blood results today. My first of monthly check ups post Lemtrada first infusion so may mention it to her then.

I think l pushed problems with bowel to one side as focus was on starting Lemtrada. I think l need some help now though.

The plus side being stuck in bed is l have done most of my Christmas Shopping. But now eating Halloween Sweets as bored. I hope l don’t get to many Trick or Treaters . They will have to have some toast.

Have a Wonderful Day everyone x


vicy
2 years ago

I was always constipated until my levels were low enough for my thyroid disease to be treated, apparently it’s an uncommon symptom of that. Occasionally the ms lot kick in….
I too see the continence nurse due to bladder control. She’s very definite that you treat constipation first & then bladder problems if they’re still there. Most of my bladder problems have gone since getting the bowels under control. Do see someone, I don’t think you’re situation is very good for you.


londonlad
2 years ago

dear @keels,

i experienced this, after my onset that led to me being hospitalised.
i was basically bed bound, for a good part of a week. Then after being discharged, it took several weeks, until i could get out of the flat, even if just for a bit, as my vertigo/ balance was so off.

Once i became more “active” (gentle walking around), things improved and eventually went 100%. it seems that inactivity can lead to constipation. if you google both “inactivity” & “constipation” you’ll find a lot of information.

Has your Nurse, discussed this with you? I was too unsure, as my diet was healthy too. it was my nurse who highlighted this to me.

Best of luck.


stumbler
2 years ago

“…..and let us know how you’re going”, @vixen ? Surely, that’s TMI………….Ha Ha! lol 😉


vixen
2 years ago

Thanks to @stumbler for responding on behalf of he metaphor police! Glad to bring some humour to your day and apologies to @keels to whom I say as a replacement ‘do please let us know how you are getting on in life’. 🙂


stumbler
2 years ago

I don’t think I’ve ever been called anything as eloquent, @vixen . And, as you can imagine, I’ve been called a few things………… 😉


keels
2 years ago

Thank you Stumbler and Vixen for bringing humour into this topic.

I had no idea what TMI meant.. lol it did make me smile

Vicky and London Lad thank you for your comments.

Lack of physical activity would make sense last year l was walking 10,000 steps a day. Now l would struggle to do a quarter of that.

Vicky l do have problems with my bladder too. I just thought that was something l would have to put up with ie getting up twice in night.

I have just spoken to my Ms Nurse she is referring me to bowel specialist. I don’t think l would have pushed for that today without everyone’s input.

Thank you so much x


keels
2 years ago

Thank you Stumbler and Vixen for bringing humour into this topic.

I had no idea what TMI meant.. lol it did make me smile

Vicky and London Lad thank you for your comments.

Lack of physical activity would make sense last year l was walking 10,000 steps a day. Now l would struggle to do a quarter of that.

Vicky l do have problems with my bladder too. I just thought that was something l would have to put up with ie getting up twice in night.

I have just spoken to my Ms Nurse she is referring me to bowel specialist. I don’t think l would have pushed for that today without everyone’s input.

Thank you so much guys x


nutshell88
2 years ago

I didnt take any meds having warm drink with your breakfast would probably do the job if it wasnt so bad.


scramblelina
2 years ago

There are a few “tricks” you could try.

Firstly, increase your intake of fruit and vegetables, most of us think we’re eating enough but we usually aren’t.

Avoid processed foods as much as possible.

Cut down on sugar, meat and dairy, ideally completely for at least a few days and see if it makes a difference.

Start taking magnesium supplements, virtually everyone is deficient in this crucial mineral and your body needs it to function properly, including your bowels. You can find oral supplements but my preferred method is to spray magnesium oil on my skin everyday as it’s easiest absorbed that way. You can buy it easily in any health food shop or online. If you start getting diarrhoea then you’re taking too much!

Increase your intake of healthy oils, particularly flaxseed and olive oil, try mixing it into a smoothie in the morning and see if it helps.

I appreciate that exercise might be a little difficult at the moment depending on your situation but some light stretching would help a lot, if you like yoga that would be ideal but any kind of light movement would be beneficial.


molineux1047
2 years ago

@keels my nurse said that wind, constipation and a full bladder can all cause back pain too – so far controlling these three things has stopped majority of my back pain it seems (well I hope so)


noelie
2 years ago

@keels sorry you’re having problems, and if you don’t mind going into more details i have a question: by constipation do you mean hard stool difficult to pass or just no need to go? Take care x


merfield
2 years ago

@keels, yes yes and yes, but mainly cos I’m dosed up on paracetamol having broken clavicle and probably ribs ( painful to cough or sneeze or just painful ) by over balancing on wh/ch/ /Batec combo. Normally ok but I eat loads of fruit & groundup omega seeds. And veg, and fluid…xx


vickya
2 years ago

Had some issues on this for a while now, but having experimented I now deal with this by taking flax seed on my cereal, a daily dose of prunes (5 ish) & psyllium husk capsules with lots of water and a high fibre diet with lots of fruit and veg… and you go when you feel you need to (riding the wave, I call it). MS nurse could not suggest anything to help so I found the solution myself via trial and error. For instance I find taking the psyllium with breakfast works far better than taking it at night, but your body may like it at another time. Good luck!


keels
2 years ago

Thank to everyone who has responded back to me.

I am so glad l have raised this topic.

Apologies for not responding to individual comments. I hope l have not missed anyone out.

nutshell l have hot lemon and water for breakfast.

Molineux l don’t have wind my back hurts and my stomach looks swollen.

Noelie l have no need to go at all. Tried sitting on toilet, raising legs etc nothing works.
When l do take laxatives a weeks worth of waste comes away.

Merfield l hope you are feeling better today.

Vickya no idea what psyllium husks are?

Question to everyone it is driving me mad taking laxatives as means l am bed bound for whole day. If l don’t take laxatives l can’t go at all. Does anyone no consequences of not being able to open bowels longest. I have left it is a week?

Thank so much x


noelie
2 years ago

@keels I feel for you it’s a horrible feeling. I have some other suggestions: you need to watch the type of fibres you’re taking, they are 2 types: soluble and insoluble. Too much fruit and veg fibres can clog you up, it just ferment in your gut if there is no bulk to get rid off. Porridge type is king for breakfast. I use gluten free porridge cooked with almond milk. I was very skeptical after eating bread all my life, but at the beginning of this year I realised that gluten bloated me and stopping the need to go. So I’ve gone gluten and dairy free and feel much better. It might not be the solution for you but worth a few month trial to see if it makes a difference. And of course stress slow down your digestive system, vicious circle. Really hope that helps you. Take care x (ps you’ll be please to know I’ve just been to the toilet, sorry tmi)


kitschmagnet
2 years ago

I’ve had similar problems since dx. It makes sense to me — The nerve damage in my spine causes lack of function in my feet. Why wouldn’t you do the same with my bowels?

I saw a gastroenterologist and had a colonoscopy done. The dr gave me this answer: “Some women got big boobs, some women got a big ass, you got a lotta colon.” Obviously years of chronic constipation could have had that effect.

My advice is to seek a specialist, but make sure they are clued in to neurlogical stuff.


gaillynn
2 years ago

I have been constipated for 17 days now. I use to get releif once a week with 3 dulcolax. Then a month ago it took 7 dulcolax, now that doesn’t work. The Doctor called in a prescription and I have been taking it for 4 days now. I had just a little releif the first day and nothing since. It is awful. I really don’t know what is next. I have had this disease for over 30 years.


keels
2 years ago

Good Morning Guys,

Sorry for late reply l went to see a show last night Called Some Guys have all the Luck. A fabulous show about Rod Stewart. I think l am going to have his songs stuck on loop today in my head though. Lol. I have finally been able to go this morning. I think maybe moving around more yesterday helped.

Noelie, my Mom’s a celeiac so completely get what you mean about being bloated. We have so many celeiac’s in my family, no Ms apart from me l do wonder if the two are connected in some way as both autoimmune diseases.

kitschmagent l have been referred to a bowel and bladder specialist so l am hoping they can help.

Gaillyn l was taking ducolax they only worked if taking too then bed bound as needed to be near a toilet. I hope you are feeling a bit better today.


vickya
2 years ago

Most places sell them
e.g.
http://www.hollandandbarrett.com/shop/product/holland-barrett-psyllium-husks-capsules-500mg-60003241
They add bulk fibre to your diet which helps the gut transit. Not for everyone but worth a try
best wishes
Vicky


keels
2 years ago

Ah Thank you. I have been eating bran flakes and weatbix with no luck though.

I will have a luck.


bok2bjan
2 years ago

@keels – I have had extreme problems with my bowel. I developed a rectal prolapse, had to have that surgically repaired (full abdominal open surgery). While doing it, he discovered redundant bowel, so resected one foot of colon. It helped the prolapse for a while,


bok2bjan
2 years ago

Oops – I didn’t mean to post that! Continuing on….. my constipation continued for years. I ended up doing exactly what you are. Once A Week – Stay home, In bed, And Take laxatives. It always made me sick due to having to take so much. I was prescribed Kristalose – and that’s like dynamite!!!

I was very inactive, and on pain medication. So it would be difficult to know what caused what. I’m off all narcotics and stopped the laxatives. I’m still constipated – but much much better. I eat massive amounts of vegetables and other dietary measures. What a change. Even though I would still be considered to have constipation – I can at least “go” by my own effort, lol. No need for dynamite! Altho maybe a bit of toilet side comfort measures! 😨


isaacson72
2 years ago

Yes, I’ve had issues with it too. Seems to come & go (lasting for about 3-4 months at a time). I take metamucil every morning, without fail. Sometimes if the day before was a little difficult, I’ll add a couple pills. Usually just 3-4 though, per morning). I drink a lot of water, I try very hard to at least walk the dog, and take the stairs at work to make sure I’m moving enough.

The biggest change I’ve made though is a standing desk at work. I used it religiously for a few months and had very few issues with constipation. Then I went back to sitting, and the problem came back. Now I’m standing again (I alternate, up & down all day). Don’t have nearly as many issues with it. I also have fissures so constipation is a problem I have to address instantly!!

I have bladder problems as well, I do botox in my bladder and that helps. Not sure the 2 are related. Also have back pain a lot – could be related, but I also have arthritis in my back, so who knows.

Anyway, hope you are able to get this issue solved. It’s exhausting to constantly think of what your actions all day long will do to your bowels!!

-Michelle


isaacson72
2 years ago

Magnesium is important too, I think somebody already mentioned that. I have a mg tea I drink at night. It helps with constipation and also headaches! It’s called Natural Calm and it also is supposedly helping as a stress-reliever, although who knows if that’s working. Anyway it’s tasty and I like it, so no harm to have a cup a day!

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