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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Multiple sclerosis can lead to positive change - not from the disease itself, but from seeing your diagnosis as an opportunity to shift your outlook. Share and learn from others about what you might be entitled to.

Topics

  • Accessibility
  • Family and children
  • Fun drugs
  • Going out
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  • Money
  • Positives of MS
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Sort 736 results by
Recent activityNewest posts

@Will_Berard 

11 Dec 2024 12:50

Will_Berard

The positives of MS - a standup set

https://www.youtube.com/watch?v=lKPeswVP6E8
London, United Kingdom
Deleted

@sko22 

8 Sep 2024 08:10 Edited

sko22

Numbness with a bit of a wobble

Hello all, I’ve had numb feet since a relapse last year. Any tips for helping with this? It’s affecting my balance alongside hyperreflexia (wobbly when going from sitting to standing) Any help much appreciated and sending all the positive vibes to all you MS warriors
  • Symptoms
  • Relapses
  • Numbness
  • Balance
  • Work and play
  • Positives of MS
First posted on the Shift.ms app

@amya 

30 Aug 2024 13:58Last reply 2 Sep 2024 18:33

amya

Any advice

Hi everyone, I’m so glad to have a place to come I’m only diagnosed a few weeks very nervous, my symptoms r ms hug which is nothing like a hug I have had , numbness in my hands torso and right leg. I also have ulcerative colitis so they have to find a medication to do both , the one they have picke...
  • Diagnosis
  • Symptoms
  • Newly diagnosed
  • Positives of MS
  • Work and play
  • MRI
  • Relapses
First posted on the Shift.ms app
16

@AdventureMan 

26 Aug 2024 09:46Last reply 26 Aug 2024 21:11

AdventureMan

Is it worth the fight?

It's funny how quickly my mind goes to "well it was fun while it lasted. Time to end things." In general I'm a very positive person and people compliment me a lot for being so positive, you always hear wiser (usually old )people say "it could be worse", and between that and MS, I've gotten through...
  • Symptoms
  • Work and play
  • Family and children
  • Balance
  • Positives of MS
  • Relapses
  • Accessibility
  • Mind and body
  • Treatment
  • MRI
First posted on the Shift.ms app
13

@DVGFleming 

15 Aug 2024 17:50 EditedLast reply 15 Aug 2024 21:24

DVGFleming

HSCT November

After diagnosis last January and my neurologist not perpepared to identify my sub type although he says it more than likely PPMS. I've decided to take the bull by horns and go for HSCT in Mexico in November. EDSS currently 3.5. I know Dr Burt and NHS health experts do not recommend HSCT for PPMS a...
  • Diagnosis
  • Primary progressive
  • Treatment
  • Positives of MS
  • Work and play
  • Ocrevus
6

@evecockerham 

15 Aug 2024 09:50Last reply 19 Aug 2024 07:48

evecockerham

Ocrevus vs Kesimpta

So I am currently on Tysabri but I have to change due to coming up to my 2 years on it and being JCV positive. My two options are Ocrevus and Kesimpta. I know they both work in a very similar way but does anyone have any advice around side effects for both etc? My nurse told me Ocrevus has an incr...
London, United Kingdom
  • Work and play
  • Ocrevus
  • Treatment
  • Tysabri
  • Diagnosis
  • Work and Study
  • Disclosure
  • Positives of MS
  • Relapsing remitting
  • Diet
6

@rubytuesday1 

14 Aug 2024 12:49Last reply 14 Aug 2024 15:48

rubytuesday1

Some days just suck

I m normally a very positive person but today I just can't stop feeling sorry for myself I m just having one of those days where ms is a forefront of everything getting frustrated over not being able to do a simple task feeling like my future has been robbed I just needed to get it out but do ther p...
  • Work and play
  • Symptoms
  • Positives of MS
  • Treatment
  • Diagnosis
First posted on the Shift.ms app
6

@cszoradi 

7 Aug 2024 20:55

cszoradi

Gym/working out

One benefit of covid, other than people having to stay away from me (joke, I am actually really sociable!) was that I massively got into fitness, although you wouldn’t tell now! This was pre diagnosis, but I lost 2 stone (again, put most of it back on!) and I actually really enjoyed working out. I’m...
  • Diagnosis
  • Disclosure
  • Healthy living
  • Symptoms
  • Exercise
  • Work and play
  • Treatment
  • Positives of MS
  • Coronavirus
First posted on the Shift.ms app

@cszoradi 

7 Aug 2024 14:59Last reply 3 Apr 2025 21:47

cszoradi

Wahls protocol diet

Hello! Has anybody tried the Wahls protocol diet? Any success stories, or otherwise?! I have done a lot of research and reading and it all sounds very positive, I tried it for a month and I must admit I felt amazing. Although I don’t really have severe symptoms to notice a massive change, but the fe...
  • Symptoms
  • Research
  • Healthy living
  • Diet
  • Positives of MS
  • Work and play
  • Mind and body
  • Money
  • Work and Study
  • Diagnosis
First posted on the Shift.ms app
19

@rustyhalo70 

6 Aug 2024 22:11Last reply 7 Aug 2024 12:16

rustyhalo70

JC Positive and Tecfidera

My neuro wants to start me on Tec as I’ve not done well with other DMT’s and he wants me on something. I’m also JC virus positive, bringing the risk of PML into the picture. Anyone out there made the decision to go ahead on a DMT after testing JC positive? Knowing the risk of PML in the equation? No...
  • Treatment
  • Which DMT
  • Tysabri
  • Positives of MS
  • Work and play
  • Secondary progressive
  • Diagnosis
  • Tecfidera
  • Gilenya
  • Research
First posted on the Shift.ms app
5
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