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What causes MS? The short answer is: we don't know. However, there is research being undertaken around the world to understand more about the cause of MS. Some of these studies explore whether certain people may be genetic predisposed to MS while others look at environmental factors such as climate.Why not join the discussion and find out what other MSers think?

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@Fuzzibunni 

22 Jul 2025 13:29Last reply 22 Jul 2025 14:31

Fuzzibunni

Something feels off

I feel like my attention span isn't what it used to be and I'm more emotional (but not depressed). I feel like I need stimulation but don't have a drive/inspiration to do solo activities... but feel a sort of anxious boredom when I'm not doing something but solo activities don't engage me, i can't m...
First posted on the Shift.ms app
2

@Jpetridish 

20 Jul 2025 02:33 EditedLast reply 21 Jul 2025 01:20

Jpetridish

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app
9

@don162 

17 Jul 2025 00:14 EditedLast reply 17 Jul 2025 08:25

don162

Multiple sclerosis question

Can the heat cause a Ms flare up in a matter of minutes?
First posted on the Shift.ms app
16

@Fozz 

16 Jul 2025 23:10Last reply 18 Jul 2025 00:44

Fozz

Unlucky? I need a rant.

So, I got got medically discharged from the army for a spinal injury 2 years ago which still causes me pain daily... I then got diagnosed with MS... Obviously caused depression... Optic neuritis kicked in and now have permanent damage to my right eye. And I get a phone call this morning from the der...
Leicester, United Kingdom
10

@JeffT 

16 Jul 2025 04:09Last reply 16 Jul 2025 04:30

JeffT

So…had a swallow study done today. It showed Oropharyngeal dysphagia. It explains some things I’ve been experiencing. Neurologist and SLP want to see me. I’m 59 years old in a few weeks and have PPMS. Thoughts? Cause for concern or not a big deal?

First posted on the Shift.ms app
3

@chrissydoz 

15 Jul 2025 23:25 EditedLast reply 16 Jul 2025 00:39

chrissydoz

Just signed up here. I was diagnosed last fall and started on Tysabri in Dec. So far it’s been really good. My symptoms have gotten better (which no one promised me). Lately, some things have gotten worse. Life has been stressful recently and I know that can cause relapses. I’m curious how everyone managed their stress level.

First posted on the Shift.ms app
5

@Tyrus 

15 Jul 2025 18:08Last reply 17 Jul 2025 23:54

Tyrus

Time to lawyer up?

After a 35-year remission, my MS relapsed in early April. I scheduled an appointment with a neurologist, but the earliest available was weeks away. In the meantime, I reached out to my PCP, who immediately set me up for a three-day Solu-Medrol infusion. I told him that’s what had worked best for me ...
11

@Juliapinkie1 

11 Jul 2025 22:39Last reply 14 Jul 2025 22:34

Juliapinkie1

A "fait accompli"..my new reality?

Heya, Don't know if i have a question, statement or observation. Or all of the above. During these last 2 years, things really took a turn for the worse, ms wise. And subsequently, psychologically as well. No major relapses, but clearly a steady decline. And new meds, which cause side-effects that a...
Amsterdam, Netherlands
14

@Mamaof4 

11 Jul 2025 20:37 EditedLast reply 11 Jul 2025 21:38

Mamaof4

My radiology Report lacks info of looking for small lesions!!

I'd like you to please look at my MRI report. My MRI was done with no contrast. My Chat GPT has found some small lesions, but my report came back as normal. The person that interpreted my MRI was not a neurologist. I'm going to a neurologist for a second opinion and to see what I'm having MS symptom...
Elm Tree Corners, Canada
1

@Marjrscott 

11 Jul 2025 18:53Last reply 12 Jul 2025 03:56

Marjrscott

Medical negligence!

Turns out I had non-specific lesions on my brain. I was having neuro symptoms when they found them, but they found them to be so “unimportant”…they LEFT IT OUT OF MY FINAL MED REPORT…..then slapped me with a psych diagnosis….now 2.5 years later my symptoms are worse and I’m disabled….im pissed. I’ve...
First posted on the Shift.ms app
4
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