@Juliapinkie1 

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Juliapinkie1

A "fait accompli"..my new reality?

Heya, Don't know if i have a question, statement or observation. Or all of the above. During these last 2 years, things really took a turn for the worse, ms wise. And subsequently, psychologically as well. No major relapses, but clearly a steady decline. And new meds, which cause side-effects that are pretty anoying, at best. Last week i had my 6-monthly checkup. It seems like my neuro and ms-nurse are a bit, how do i explain, blasé? Everything i tell them, even new symptoms, arn't immediately dismissed, but they react more in a- "well, that's just how its going to be from now on" -manner. It feels like there was some kind of meeting or memo i missed, apparently. My reallity from now on. Like it's part of the ms-deal. But suddenly, in the mean time, i'm stuck with wormlike sensations in my leggs, as well that they wobble and and shut down whilst crossing a street. Neuropathy that's unbearable sometimes. A level of fatigue and sleepyness that's paralizing. And during those idiotic warm days (39°c, mind you, in the netherlands!),i fell down in the hallway and couldn't move, speak, swallow or even cry. That's just a little selection. Now, i knów they cant really dó a lot, but i, against my better judgment, feel soooo angry! Powerless! Mad! Do i expect compassion or something? Or demand a sollution? I feel empty. Sooo...This is it then? I noticed a lot of questionmarks in my ranting. Maybe it's just that. Rant a little. Stupid me. Stupid ms-BS. Gross, disgusting joke of a desease. yuck 😠😤 Thoughts?
Amsterdam, Netherlands
@Lizabeth

Excellent rant. Really. Funny. Insightful. Spot on. Furious. You capture what so many of us feel, even if we’re living different versions of the same bizarre dreamscape. MS hasn’t robbed you of brilliance. Or feeling. Suck it, stupid chronic illness!!!

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@Boriprincesa

You are right about it all, the symptoms and the reaction you get from your doctor, I am having the same problem, my doctors are no help either,this diseases is frustrating and hard.I just try to get through each day the best that can and ask God to give me the strength I need to get through each day and hope that one day Jesus will take it. away.

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