@sugaplum 

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sugaplum

Dizziness

Hi I was hoping someone might be able to tell me their experiences of dizziness? I am having my second relapse in three months and my Neuro tells me I have a lesion in the brain stem causing the dizziness I feel very drunk all the time and it is really getting me down. I also have numb mouth, tongue, face and head. The worse thing is this dizziness tho and it is effecting my eyesight. I’m all over the place. I’ve just finished more steroids and as you can probably tell i am fed up! Anyone else had this? Does it ever go?? I know it will probably pass but it’s so hard waking up everyday like this 😔 Thank you
@aabreu

Tell me about it. It is like being drunk without the lowered inhibitions and euphoria. The thought of having a drink is ridiculous. I would do anything to feel normal again. For this numbness to subside.

@londonlad

@sugaplum Really sorry to hear your going through this. I know how awful it is. I had a brainstem lesion, at onset, last year. It had me in all sorts of bother, and similar to you, I had issues if dizziness. It was at first thought I had an ear infection, as I had mild balance issues for first few days. But it of course turned out to be much more. Things have got much better. I have all but got over the dizziness, 99% of the time. There are ocassions when things stlll are not great, but hey, I guess that was the case, even before. I know it’s frustrating and terrible to go through. And I spent ages searching for reassurance on the net, that things would get better. And while I didn’t actually fully know if they would. It eventually did. The face numbness has subsided, again to maybe 90%. It started on my lips and tongue. One stage it crept all the way to scalp, but was purely left side of face. It’s odd, as it’s noy numb, as such. More like the stage after being numb at dentist. And it’s transient, changing all the time. I think I’ve just got use to it. I feel amazing compared to the peak of the relapse and just continue to hope for a full recovery. Otherwise, just see these residual things, as battle scars. Hope it gets better soon.