Confused
Hi, I posted back in January it's taken this long to just have a couple of mris. So back in January my brain mri showed lesions and demyelination I also had lower back pain, pins and needles in legs and arms, really bad headaches, dizzy, basically all the symptoms of ms but today I went to discuss my spine scan and the neurologist was a bit crappy she said the spine scan was clear so she didn't think it was ms but i've read on here of ithers with only brain lesions. Nothing is making sense and since all those symptoms i've also now got pain in my lower neck and shoulder it's really frustrating. She has said she'll do a lumbar puncture and nerve conduction test next. My question is have any of yous only got brain lesions and been diagnosed with m.s as i'm sure she's wrong in saying not likely without spine lesions. Thankyou for reading
So sorry you’re going through this! I totally get why you’re feeling frustrated, from hearing other people’s stories on here, it’s really not very clear cut sometimes. From what I understand, for an MS diagnosis, you have to have lesions in multiple places, across a period of time. If I understand correctly, you’ve had some lesions show up on a brain scan, but none anywhere else at the moment. So you may not get a diagnosis you until they can show that there are new lesions that have developed over time, either on your brain or in new places. If they’ve only observed one instance of lesions so far, or one relapse, it’s called “clinically isolated syndrome”, and everyone starts out with this diagnosis — a lot of us later get a diagnosis of MS when more lesions appear on a scan at a later date, or if we have a relapse, like optic neuritis or numbness. I think some people can stay with clinically isolated syndrome and don’t develop more lesions. It’s a case of “wait and see” unfortunately, and it can be really worrying with the uncertainty, I definitely felt that myself to begin with! Hope you get some clarity soon.
Hi, thanks for your response. This is the frustrating thing my eyes go really red and burn I showed her the picture today but she didn't seem interested and i've had other issues before my back and leg like hip pain, my ankle was suddenly hurting once and they said it was arthritis but it didn't make sense as they cleared up whereas arthritis wouldn't of. It's all gone on for quite some time they kept dismissing the head pain as stress which the scan proved otherwise. I'm so fed up of this not knowing what's going on or getting any treatment as i'm worried what could happen next in the meantime .