@sarahxnn 

Last reply

sarahxnn

Time from MRI/LP to diagnosis?

Hi everyone, I have been having symptoms lately that look and sound a lot like MS. I’ve been told by doctors that this is their main concern but they’re really limiting my ability to walk, go outside and live my life. I had a spine and head MRI without contrast as outpatient, then I was admitted to hospital for 4 days where I had a second spinal MRI with contrast and a Lumbar Puncture. This was all done just before Christmas (I was discharged on the 23rd) and was told I’d have an appointment with neurology as an outpatient. I just found out that appointment isn’t until the end of March 😢 I know how much the NHS is really struggling at the moment but to be in hospital, poked and prodded then left in the lurch for 3 months is so scary. I haven’t had an MS diagnosis and know very little about what the scans show. Does this sound like a normal timeline for you? Should I be questioning this? If you have been diagnosed recently via the NHS in the UK I’d especially like to hear how this was for you. I’ve been put on some medication for neuro pain and been told to do some bladder control exercises from an MS charity website in the meantime. I’m feeling a bit lost and scared 😞 thanks to anyone who reads and responds!
@DVGFleming

I'm in very similar position. Having lumbar puncture and MRI on 25/1 to confirm (?!) MS. Feel lime I've been left in limbo. 100% support NHS and how hard all the staff work just feel I've been left. God knows when I'll receive official diagnosis. I'll just watch my symptoms get worse in meantime......

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@HappyHen

I found it took around 6 months to get a formal diagnosis following MRI & PET scans, LP, Evoked potential tests and umpteen blood tests. I have now been told that diagnosis of RRMS is questioned and may have a less common type. The main issue is that MS is not easy to diagnose; it relies on excluding other diseases as much as determining MS. Many people have to wait years for a full diagnosis. Rest assurred the consultant will be working in the background and a diagnosis is generally only made with the clinical opinions of more than one neurologist. If your symptoms are getting worse then it may be worth discussing with your GP as it possible to have a relapse or worsening due to hidden infections. Wishing you well.

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