@nikkileigh 

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nikkileigh

Avonex-Help and advice

Hey guys, I got the call today to say I have an appointment this Friday to start with my treatment. I am going to be using Avonex, this is my first experience with treatment for my MS. Was wondering how those of you using it found it in the beginning? How were the flu like symptoms, did they persist? Does your medication effect your decision/how often/easy it is to travel? Are there any pointers to know about? Anyone experience the more serious side effects? I know my doctor can tell me all of this stuff but sometimes it helps hearing from others in the same situation. Also I live in Italy now and am not fluent in Italian so the language barrier can make me nervous sometimes! Thanks for and help/advice you can give. Nikki x
@chrisg

Hi Nikki, I've been taking Avonex for about 4 years and I don't really have any side effects. I take a head ache tablet just before the injection so that probably helps. I have traveled a lot with the medication and have never had any problems. Personaly I think the Avonex works great having been on a 3 times a week injection before. Hope that helps!

@norfolkgal

Hi Nikki I have now been on Avonex for 12 months and was on nothing before so no comparisons here to help like that. I have got on fine really, I take pain killers 1hr before and inject in the evening so I then am not long before bed and sleep off any side effects. Occasionally I have a 'heavy head' in the morning but nothing too bad and twice I have been super super hot and uncomfortable during the night so think that must be my flu like side effects. I have never had problems traveling with it as 1st delivery brought me a travel case and cool blocks to pack it in and to keep it cool so no problems but never been abroad with it though. Hope that helps. Zoe