@hayleyc85 

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hayleyc85

HELP WITH SYMPTOMS

Morning All, below is my story, nobody has offered me any advice other than possible virus or vertigo but thanks to having 3 months with no help i decided to do some research and i've found myself here. Can anyone offer any advice as to if i could have MS and how i get taken seriously? End of November i woke up and jumped out of bed and immediately fell over, my legs couldnt hold me and my balance was cock off, i thought id just got up too quick, but it happened another few times before i left for work. Driving to work i couldnt help thinking that the white line in the centre of the road had moved, and i was clipping kerbs (really shouldnt of driven i dont think) when i got to work, (i have been able to type without looking at keys since i was 18, im 30 now) i couldnt hit the right keys, everything felt and looked like it had shifted to the left a few inches, couldnt see keys on my phone or anything. Additionally felt dizzy, balance was off, words felt like they were falling over each other and i couldnt do jobs i have been capable of doing my entire adult life. I went to the gps that day and they said i could have a virus or vertigo. I left without any medication or anything. I continued to struggle, unable to open bottles, my right side feeling like it needed to over compensate to be able to lift things, confusion, frustration and fear. I visited A&E the following week as i still felt the same, they did a million tests on me but said they couldnt figure it out. at this point it was the feeling everything had shifted right, and my co ordination for example if i tried to touch my eye, i would poke it because it felt like it had moved, that was the issue, i was not longer dizzy but felt like i was getting better in the sense of getting used to where my vision was now, still walking into doors where i was misjudging gaps etc. They sent me to a neurologist who again said she couldnt see anything wrong, maybe a virus but would send me for am mri just in case it was a stroke. I have had this now and been told my results are with my gp, i cant get in for two weeks but my symptoms have changed and since my new one last week. (vertigo when lying down and getting up, and a vibrating pulsing senstation in my bottom and legs when i bend my neck) i can see a lot of similarities in these and the symptonms of ms. i am taking all the above info and the below list of ailments to my gp. The balance and sight issues are 'better' but i feel i have just got used to them, not that they improved. I am left with the following ailments Lack of conentration fatigue confusion bad memory vibrating when looking down pins and needles in right leg dizziness when lying down and getting up sensitive to bright lights and loud noises constant headaches clumsy sensitive, easily upset angered Can anyone offer any advice? Im going crazy stressing out. I assume if my MRI results are clear, they will kick the idea of me having MS out, even though i read you dont soley diganose it on the mri results? What do i need to stress to my gp?
@fendercali

Hi hayleyc85 Sorry to see you're having a hellish time of it at the moment. The main problem I've seen when it comes to diagnosing is that it affects every person differently. It can also be confused with other illnesses due to the varying symptoms. Best thing I can think of is to detail my road to diagnosis. I was 20 and lost the feeling in 3 fingers in my left hand but that was all. Went to GP who said it could be a trapped nerve so to to keep an eye on it for a few weeks and if it still stuck around it could be neurological. 3 or4 weeks later it had all gone back to normal so thought nothing more of it. Then a few months later I had a fall that thankfully resulted in no injuries but within a week of this I lost a vast majority of feeling down my right hand side and started suffering dizziness and double vision. This led to a referral to the neuro ward who wanted to do an MRI. This came back as showing multiple scarring but they wanted to be 100% sure so sent me for a lumbar puncture. This showed white blood cells in my spinal fluid which apparently shouldn't be there and that resulted in my diagnosis. Based on that it is possible they are waiting till a second event but obviously that won't help you much right now and won't treat and attempt to prevent future attacks if it turns out you have MS. I think the only way to be positive is with this combination of results so I fear you may just need to wait till MRI scan results come back. It's great that you want to be proactive but think you will just hit road blocks until this happens. I hope this info is useful to you David

@hayleyc85

Thank you David, that does help. I just feel very lonely at the moment and am not happy with the words 'its just a virus' i keep getting. but it seems even if they Gps did agree my symptoms sounded like MS, i would be pretty far off a diagnosis. I know my MRI results havent warrented me an emergancy appointment but i dont know if leigions or scarring would warrent that anyway? Its a confusing times. Thanks for the words :)