@fendercali

Last reply

fendercali

PIP screwed me over! Surprised?!

Well I've been informed I got the lower rate of the mobility and so my car will be collected by the 17th. The anger I feel is indescribable! I could see it coming the more I read, the form questions and from the assessment. I'm fighting it all the way though. Sent emails to MPs, MSPs and media to see if I get a bite but so far just told things will be better when the welfare powers come to Scotland. Told dwp to revisit their decision and explained why I think they are wrong (somehow 10 steps turned into between 20-50 metres!) In the meantime though due to the problems I have acquired physically over the last decade it means public transport is a no go so I have had to leave my job of 10 years. I have no idea how I'm meant to get to my hospital appointment next month never mind get out of these four walls. I'm racing and refuse to just sit quietly. Has the new PIP system thrown anybody else's life into the gutter?

Stumbler

@Stumbler

@fendercali , you're not the first and you won't be the last. Whilst this reassessment exercise is needed, the whole process is being abused and mis-managed. Have you tried contacting the MS Society for advice and support? I wish you well and good luck in your efforts.

fendercali

@fendercali

Yeah I'm updating them with everything since November but seem to be getting told there's not much that can be done other than voicing disapproval of how it's all set up. It's a one size fits all benefit but it's clear that doesn't work. Will fight them to the bitter end though, think everyone has to. Thank you for your well wishes @stumbler and I really hope they rethink this soon cos this kind of thing could easily push people over the edge. Thankfully I have a very supportive partner and family but think it's anger that's really pushing me along the tracks which may not be the best thing haha but I'll take it if it means I carry on battling them

cameron

@cameron

Have you looked at the advice on the appeals process on the Benefits and Work website?

tessa

@tessa

Also the CAB have very good info on their website. A huge percentage of decisions are overturned at appeal apparently. There are two stages of appeal and the first is often refused again but you then need to do the second which is the real deal. You can go to tribunal if all else fails. Have you taken advice about it from CAB .they often have a designated person to help with this crap, And yes I always write to MP etc. I get really furiously pro active .

tessa

@tessa

Just done a it more research as I am sure you have. Motability on line gives info. There seems to be some interim payment...1 or 2k depending on timings. And something about purchasing the car. I know it's all awful but at least that is something while you are fighting broken Britain as my son calls it!

fendercali

@fendercali

Yeah I'm dealing with CBA at the moment going to see them on Thursday as since I can't work I'll ironically need to claim more benefits beyond what they were giving me for the car! The stress of this over the course of December to now has thrown some symptoms into overdrive so I'm reluctant to try and deal with too much at the same time. My MP has said he will help me with the appeals process but first you need to go through revisiting decision thing so will find out the outcome of that in next couple of months. If somehow I don't win the appeal then I'll start looking into the 2k for a car thing but it's just an added stress to our already stressful lives, like MS sufferers don't have enough to deal with!

Stumbler

@Stumbler

Looking at that transitional payment from Motability is tantamount to accepting defeat. It doesn't seem right to cancel the Motability contract whilst these decisions are ratified! Isn't this country based on the premise that we're innocent until proven guilty! Perhaps the DWP would like to remove our sticks and wheelchairs whilst we have to prove that we need them! :mad:

cherish

@cherish

The 2k for a car! Assholes. That's enough for the insurance and road tax..... So what do we buy a car with? Oh yeah, we will just buy a mountain bike with it! I mean if we fail the pip it surely means we are strong enough to cycle!!! F***ng Joke. Lisa xxx

Redman

@Redman

Terrible that PWMS are suffering here and other folk who are abusing the system are slipping through the net..I have said from day one that a diagnosis of MS or other illnesses should be looked at differently....

tessa

@tessa

Totally agree with @stumbler about cancelling the mobility contract while you are going through the probably long winded process of appeal. It is a contract. There must be legal issues here, What are they going to do if you don't return it ? Forcibly remove it or take you to court? Press would love that . I know so many people who play the system....generally over work, and get away with it. It is so unfair that people who really need help are the ones who are penalised

cameron

@cameron

David, you have my complete sympathy. I too had a Motability car but decided not to renew my contract three years ago when the PIP started. I knew I wouldn't be able to cope with what you're dealing with now. It hit me financially because when I bought my own car I had nothing to trade in. As an extra stress, I was told that as I'd had a Motability car, that cancelled out my no claims discount, as the M car counted as a fleet vehicle (whatever the logic there..). Fortunately, the next insurance company I rang said that was rubbish and I got a good deal. I've missed out on the transitional payment, too, but no regrets. As the others have said, I think it would be a mistake to sign up for that deal too quickly. You can bet your life that the eagles at DWP will have created multiple get-out clauses to ensure that the £2k will be paid to as few people as possible - or - better still for them, they get the £2k and in the process remove themselves from PIP eligibility and/or further appeal. Now that WOULD save them money....... Re: your current stress, it's good to hear that you have supportive people round you. xx Kay

fendercali

@fendercali

Thank you for all your replies. I'd say it is good to know I am not the only one but in reality I am sickened by how many people this has affected! I've just called them and asked them for all paperwork they have received from GP, Neurologist, Nurses and also the assessors report. I'm at the stage now where getting my car back will not be enough of a victory. I wanna get them and I wanna get them good. I think I posted an update on my facebook page when i received their initial decision of, "Cry havoc and let loose the dogs of war" and I am still very much of that mentality. Its the one size fits all criteria that I think has the biggest impact on the decision made for people with MS and similar illnesses. I really hope that others who have been unfairly judged for PIP have a good support base around them because I know if I didn't I would be lost right now. Even just coming on here and knowing you are not alone and others understand what you are going through keeps your spirits up so again I thank you all David

tessa

@tessa

Interestingly The Equalities Act 2010 states that the people with multiple sclerosis are one of three illnesses that are designated " disabled" from date of diagnosis..!!!

fendercali

@fendercali

@tessa i really think they don't have a leg to stand on with their decision but its the fact that they are forcing people to go through the process of appealing this and the stress that comes with that. Can't help but have panics of relapses potentially happening while I go through this but I am trying to keep that thought as far away from me as possible. Some Sambuca may help with this, especially since i won't be driving anyway :)

TracyD

@TracyD

Have you tried your local BBC Radio station ? The breakfast show DJ's generally love tearing people like the PIP people to bits, dragging them out publicly and flogging them - might be worth a try ?

fendercali

@fendercali

Hi @tracyd I have contacted some local newspapers and radio/Tv news shows but will probably try and get in touch with some more over the next couple of weeks

TracyD

@TracyD

@fendercali We have Andrew Peach here on Radio Berkshire - it's the sort of thing they love to play with - he loves his soap box a lot xx

fendercali

@fendercali

I just feel we need to have our voices heard because even though my decision may be overturned, others will still be met with flat out denial that they need help. Plus then they have to go through what I fear will be a very stressful and taxing appeals process. Will definitely look into more media outlets

cameron

@cameron

@tessa - that is interesting! I may well be using that Equalities Act statement soon. I am set to bring a case against our council for discriminatory behaviour towards me! They are refusing to allow me to have rubbish bags instead of enormous wheelie bins which would block my frontage and cause me to have even more falls than normal. I am angrier than I can describe. At the moment the case is being taken up by my local councillor, next step will be the MP and if she can't resolve it, I'm going to my lawyer.

tessa

@tessa

Hi Kay...unfortunately there seem to be caveats around its interpretation by every agency that can possibly be involved,! So probably not worth the paper it's written on !! Just a sop to disability rights groups. We will all end up at the European court of human rights Tessa xx

fendercali

@fendercali

It's definitely shocking in this day and age that we all have to fight just to be treated with a little respect and dignity! I do think one day we're all gonna end up in a class action suit to achieve this

MsHackney

@MsHackney

Hi @fendercali so sorry you are having to deal with this. Saw on Twitter that Tani Grey-Thompson is asking for people that have been affected by this to get in touch. Here is her tweet Anyone out there who can walk less then 50m and have lost #pip please get in touch. Email [email protected]

fendercali

@fendercali

Hi @mshackney Well spotted! I have popped an email to her so thank you for posting the info. David

tessa

@tessa

Hi David I have sent her an e mail too on behalf of ALL those with ms. I don't think a disease which classifies you as disabled in the Equalities Act should result in all this stress. Just think of the enormous clout we all have if we fight this together for the greater good.

fendercali

@fendercali

Great idea Tessa I'm on my way to citizens advice to try and take the money stress off me while I deal with explaining very clearly and slowly why PIP is idiotic and the government are destroying people's lives

Rhymenocerous

@Rhymenocerous

Hi Fendercali, sad to hear that you have been 'downgrade:' to the lower mobility award. Please don't give up hope, this is actually pretty common at the moment and there ARE things that you can do about it, and with a reasonably good success rate! I decided to write a mini blog series on the PIP appeal having gone through all the way to 1st Tier tribunal with a CAB solicitor and winning my award, because I learnt so much from both my amazing solicitor and the whole process in minute detail. If you're interested, try: http://manylemons.com/writing/many-lemons-pip-appeal-advice-part-1-navigating-the-process/ http://manylemons.com/writing/many-lemons-pip-appeal-advice-part-2-top-12-tips-to-read-before-appealing-your-pip-award/ The advice of getting in touch with the CAB specifically to appeal your case is the right way to go. In the meantime, most important thing you can do is adhere to the deadlines - from your posts I think you're at the 'mandatory appeal' stage of going back to the DwP and requesting they look at your case again? Or have they already taken a second look at it? Mel xx

tessa

@tessa

I have copied local conservative MP into my email to Baroness Grey- Thompson and asked to see him about the issues ..individually we are weak but together we are strong.

Stumbler

@Stumbler

@rhymenocerous , I just read your blog posts, Wow, what a great resource. Thanks for sharing.

Rhymenocerous

@Rhymenocerous

Tessa, completely agree re. the Equalities act, and great to hear of your emails to the MPs. Love your phrase, we are indeed strong together :D Did you head about Linda Burnip of DPaC? (Disabled People against Cuts)? - 6 months ago she initiated a UN investigation into the government's cuts to disability benefits, in terms of the Human Rights Act. (She is a legend!): http://www.theguardian.com/society/2015/sep/16/disability-un-investigation-uk-government-violations-human-rights This is their website: http://dpac.uk.net/

Rhymenocerous

@Rhymenocerous

@Stumbler you're welcome. I've been thinking the last week or so of doing a workbook for PIP applications, and for PIP appeals, as there seems to be quite a need for a resource like this. I'll start another thread... :D

nic75

@nic75

David, contact your local Council's Welfare Rights Officer, they are the best people to deal with reconsiderations & appeals.

fendercali

@fendercali

Wow so much info guys have a busy weekend ahead of me! Citizens advice have no appointments free for next 3 weeks and 12 people queuing outside it when I got there but can't stand long enough to get there an hour early lol. Still juggling work for this next week but trying to get the wheels in motion for when PIP essentially sack me from my job on the 16th! Hate filling in forms and the different government agencies won't tell you "you can claim these as well" so it's a job just figuring out what ones I'm eligible for!! Hence why I'm trying to get to CAB so will keep trying. Thanks again for all the info much appreciated David

Stumbler

@Stumbler

@fendercali , giving up work is contrary to Government policy. The following scheme may provide an interim solution to retain your job until you can retain/reacquire your Motability car:- https://www.gov.uk/access-to-work/overview

Rhymenocerous

@Rhymenocerous

Great call @Stumbler, @fendercali that advice is gold.

fendercali

@fendercali

Hey @stumbler still need to go through all posts, been a slow moving day. I looked at that benefit and my jaw dropped cos if I'm eligible for it my understanding is its up to £40k a year!!! They could just give me a car for that!!! My understanding is its only costs for getting to and from work and so this would sort one problem but still leave me struggling for prescriptions shopping gp appointments Neurologist appointments to name but a few lol! I don't really wanna settle for something that still restricts my independence so the only time I'll look at benefits like that would be if I'm unsuccessful at appeal. Probably gonna have to do this all over again next year when welfare powers move to Scotland so any outcome is probably temporary lol! Who said having MS is not fun?!