@aleks 

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aleks

Being disabled in times of global pandemic.

Hi all, hope you are doing fine, greetings from Luxembourg! I've spent most of my morning being upset with this whole pandemic drama that has been messing with our lives for a year now. I lived in two countries in the past year (Belgium and Luxembourg), I also visited my family in Poland for Christmas. What I can say after experiencing living in these three countries in times of COVID is that WE/THEY HAVEN'T LEARNT ANYTHING about how to manage society's life in lockdown. I can tell you, as an MSer with visible disability (walking is shit, I don't know who invented it, but it's so exhausting!) and using a cane on a daily basis, I struggle a lot. Most of the time I feel like Rapunzel locked in a tower (my apartment in Luxembourg) and dreaming of going out- to the cinema, my favorite shopping mall or any coffee place (literally ANY, I can even agree on Starbucks). And even though these places are not closed due to the lockdown (you can buy coffee for takeaway), I refuse to leave my home. Why? Because: 1. Lots of people don't wear masks (I get it, I am also tired of these rules and obligations, but for Christ's sake, if we don't obey with some of them, this will never be over. Besides, I just don't want to experience this awful COVID+MS combo. No.) 2. Nobody cares about disabled people (REALLY. You want to buy coffee but the line is too long and you would prefer to sit somewhere while waiting? SORRY NO, IT'S COVID. YOU CANNOT SIT ANYWHERE NO MATTER HOW DISABLED YOU ARE. Maybe I should just imagine my legs are not tired so that my brain believes it? It usually worked with the need to pee when I was a kid, my mom was always telling me 'just don't think about it' and somehow it worked). Why am I even writing this? Well, yesterday I told myself 'basta', I dressed up (sic!), took my cane, my mask and my boyfriend (he really didn't want to) and went to a shopping mall. Because I just couldn't stand Netflix and Amazon Prime that day and I really wanted to look at clothes (that most probably I will never be able to afford). This was a mistake. After 30 minutes my legs were already tired and I needed to sit. All the benches/chairs/whatever were removed, 'because of COVID'. Okay, I decided to sit on the floor, because where else?! After one minute, some security guy came to me and asked me to leave (because you cannot sit anywhere obviously). I waved my pink cane, he felt stupid, apologised and left. 3 minutes later another guy came - did the same, he apologised and left. 2 minutes later - yes, you guessed it! Same thing. I got pissed, stood up (okay, my boyfriend lifted me up) and left. Did you experience anything similar in your countries? Or is it only me, unlucky Aleks? Anyways, I am now drafting an email to this shopping mall asking them to create some disability zone with at least 2 benches, where people like me or older people can just sit and rest for freaking 5 minutes. Keep your fingers crossed! Happy Valentine's Day! Remember, LOVE YOURSELF <3
@Clary

Hi @aleks this sounded like it sucked. Covid is making life worse and more difficult, especially for those with MS. When will life get better? Covid is changing our lives. I miss life outside.

@jamoranto

Happy valentines