A year on from diagnosis
So this week is 12 months since I was diagnosed can't quite believe it's been a year already. I'll be honest I'm feeling a bit mixed emotions at reaching this milestone but guess that's normal. I had my annual MRI and results were positive no signs of new activity but I have felt like I've been struggling lately with symptom flare ups especially altered sensations, fatigue and cog fog. Can symptoms get worse when MRI doesn't show any change??? I have a telephone appointment with my consultant next month and not sure if I should be raising these issues if no change on scan? Do you have any tips on how to get the best out of a telephone consultation?
Hi, having new symptoms can be hard. I would definitely recommend telling your neurologist about any symptoms you have experienced and when they started. MRI is good, but not perfect. I think telling your neurologist all your symptoms can help them make better treatment decisions. The neurologist may wish to set up a face to face consult so they can do a neurological examination 🧐. This can also aid them in assessing your needs. Good luck.
@WINDUSS , MRI scans don't show a full picture. They can highlight new activity, if scanned with contrast, and show existing damage. There is also the concept of "smouldering MS", a monster that never sleeps! Mixed emotions, I'm not surprised. Don't beat yourself up about it. A year without any visible activity is to be celebrated. It's a win!