Such a refreshing community 🩷
Hi Everyone,
Im Steph and was diagnosed with RRMS back in April and saw my consultant for the first time yesterday. I've struggled with dealing with the diagnosis since April, not wanting to discuss it/ bury the subject completely, so when I heard about this community I was reluctant.
I was so wrong. What a refreshing community feeling like this isn't the diagnosis of doom.
I was wondering if anyone would be able to help... Im considering my options of treatment and have decided it will be between Kesimpta and Ocrevus. But I feel like im stuck between a rock and a hard place in trying to decide.
Im extremely worried about the drop in immunoglobulin resulting in multiple infections etc.
Thanks so much in advance
Welcome. I’m currently taking Ocrevus. This involves a trip to the hospital twice a year for 3/4 of a day. I also have to think about travel. I chose this medication because this was all that was offered to me. I am doing well, so far. I have been taking it for 1yr and a half. I believe after 2yrs it can disrupt the immune system further. Kesimpta involves self injecting at home. This can be more convenient. There isn’t a great deal of difference in efficacy, for more information your MS team should be able to help, or UK charities can be very helpful. All the best with your choice.
Thank you so much for you message 🤗 Travel is something that is important to me too hence my dilemma. I have yet to speak with MS nurses so hoping to discuss with them a little more. Thanks again for sharing your experience