Wish I could ignore those who don’t get MS
why do I find it so hard when others feel the need to make comments about me not helping? I would love to be the person who could just forget the comment or even call them out on it 🤷🏻♀️
We had a party in the house for my daughters 18th. This was really important to us as a family to celebrate her big event. My immediate and some of my extended family were happy to do all the catering as I now have very limited mobility. A lovely evening was briefly altered into a massive struggle as I fought tears in front of around 20 friends. A family friend said something to the effect of “ no just you sit there like the queen, we’ll just do all the work” and when I didn’t react repeated it twice again.
I really struggle as I used to be the one who would do lots to help. Does anyone have any tips on how to deal with situations like that?
Criticize on how they do the work. To that sentence you could answer something like "Oh yes, I will... but could you maybe try a little harder.. this task isn't that hard.. and I know what I'm talking about, I used to do it all alone.. and try now because there won't be a 'next time' for you, since this absolutely is the last time you'll be invited to anything :)" no like literally, I'd go nuts if someone were to talk to me like that.
Tell them well "yes, I'll sit here since I have MS". If you always did it they should cope with you not doing it and it isn't being a victim, you have MS which causes all certain symptoms that we know of, this is the issue with a disability being invisible people don't get it and are insensitive