@SamanthaF 

Last reply

SamanthaF

Confusing energy

Hi all. I am so confused, in a good way I guess but still... I have been feeling absolutely awful all year. I ignored the signs for too long which resulted in me reaching breaking point in October and I had to stop work. I've been working really, really hard to get better and I am definitely miles ahead of where I was a few months ago, but I still struggle massively with fatigue and have been averaging around 2-4 hours of light activity before I need to lay down and I'm written off for the day. This is the weird part... I really wanted to go out last night with my bf to see a band at our local for NYE, but I was worrying all day about not being well enough to go and I felt horrendous, despite extra resting all week in preparation. I literally dragged myself there because it's 2 mins from my house and my bf had paid £30 each for our tickets, so I didn't want to let him down. Once I settled in, I had a blast! I literally danced my butt off for about 2 hours and I felt fine. I felt like everything else melted away and I just went with it. Now, don't get me wrong, this is great news! I felt like the old me again and that's what I've been desperately longing for, but I can't understand where the energy came from. A few hours before, I was laying on the sofa crying, dreading having to leave the house and considering writing off another evening. I've been so bad recently that I've considered applying for PIP, something I've resisted for a while because I was convinced that one day this would pass and I'd be me again, but it's been so long now I'd practically given in to the idea that maybe this is my life now... Then this!? I am holding on to the happy part of this story, but I feel like a fraud. It's confusing and I worry that people who've seen me barely able to lift my own arm will think that I'm putting it on and I'm really not! Does anyone else get bursts of energy like this?
@Runningonempty

Fatigue is a soul sucking unpredictable cow…..OH recommend we (mser’s do diaries) monitor, record and look for patterns but fatigue triggers will be different for all of us …….maybe stressing about it & the build up is the thing that caused u too feel so bad but when u actually went it turned into a stress reliever and exercise is also good for fatigue I.e the dancing - fatigue it’s triggers & effects are mind numbing & baffling at the best & worst of times. The important thing is just take everything a step at a time try not to put additional pressure on urself and to keep fighting in whatever way u can however u can at the time - also Re - PIP put on the forms what ur worse day looks like and the nature of MS means that’s changeable and remember u r only asking for what u r entitled too and should be rightfully urs no matter what type of day ur having- chin up kid & take care of u & urs!!!!! 💪❤️‍🩹✊🤞👍😊

@Runningonempty

Oh & p.s the meds & there side effects play apart too 🙄😳🤷🏻‍♀️😂