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@Roberta1972 

Last reply

Roberta1972

Scared and angry

Hi.. I'm the newbie. I have struggled with chronic pain, fatigue, brain fog and vision problems for 15 years now. I finally got a diagnosis of fibromyalgia in 2019.. in 2020 I saw the opthalmist at the hospital and he sent me for an MRI (July 2020). I heard nothing back so presumed no problem had been found and saw my optician on the high street for a new pair of glasses. 2 weeks ago I had an appointment come through the post for the opthalmist at the hospital again. We discussed my eye tests and medication and I said that i presumed the MRI was clear as I'd heard nothing. He pulled it up on his screen and said no, there are lesions and inflammation on my brain. He told me it most probably means MS and I'll hear from a neurologist. It took them 8 months to tell me what they had found and I'm angry about that. I'm scared at the prospect of it being MS but having to wait for god knows how long for a neurology appointment, to tell me yes or no.. Has fibro masked the MS? Do i really have fibro? Do i have MS? So many questions and no-one to answer them. Can you have lesions/inflammation on the brain and NOT have MS? So sorry for the long post. x
Loughborough, England, United Kingdom
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@Stumbler
@Stumbler
 

@Roberta1972 , I can understand you being scared and angry. So, it's good that you've come on here, to talk about it.. I'm not sure I like medical professionals saying, "it might be MS?". The first thing you do is have a consultation with Dr Google, which can well scare you! So, what's going on? Well, you didn't really expect a definitive answer here, did you? The answers to your questions are "possibly"! It's down to a Neurologist to decipher the MRI scan, do bloodwork, perform a physical examination (possibly!) and discuss your medical history. For a diagnosis of MS, they will need to satisfy certain criteria (https://mstrust.org.uk/a-z/mcdonald-criteria). So you might want to try and recollect what's happened and when, making a short summary list. Unfortunately, it does take time to get to see a Neurologist, more so at the moment. You could call up the Neuro's secretary and offer to accept a cancellation or, if finances permit, go for a Private Consultation. Long post? You needed to get it off your chest!

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@Utopia63
@Utopia63
 

I know you are going through. It does take time to see a neurologist. There are people on this site who will get you through this. You are not alone.

1