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@RobertJohn 

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RobertJohn

Rebif to Copaxone & now Tysabri

Hi folks I was taking Rebif for a couple of years but got switched to Copaxone cos of a few positive anti bodies results. I've been using Copaxone for about a year and a half now but my neurologist wants to start me on Tysabri cos he's not happy with my relapse rate. I was wondering if anyone could share with me some of there experiences changing to, or using the treatment?? I didn't notice the things he was seeing and thought my health was relatively OK.I've always sort of thought when it comes to having your meds at the hospital through a drip once a month it's sort of not going right and start to go down hill. Thanks Rob
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@MrsMissy
@MrsMissy
 

when I was diagnosed my Neurologist put me straight onto Tysabri after he put me into hospital for 5 days and of those days I had 3 days of 1000mg steroid infusions. I've now had 5 infusions and have felt a huge change in my symptoms...for the better. The tingling has improved by about 80% and my balance has improved 10 fold. I really am very happy with it and it's only a monthly infusions that takes 2 hours out of my day so I figure that its a pretty good option :)

@CaptainKristoff
@CaptainKristoff
 

I was put straight onto Tysabri and it's made a massive difference to me. I went from regular relapses to none in the past almost 2 years. I had infusion #23 today and so far I'm very glad I was put on it. Everyone I've spoken to whilst getting my infusions has said what a massive difference it's made. One thing that can be a factor that should be taken into account is your JC virus status, if you test positive then there is a risk associated with the treatment. I'm positive now but was negative when I started, the benefits are so great I'm willing to take a calculated risk though. The majority of people i've spoken to on it have also been positive......just something to think about.