Am I crazy......?
To be considering starting a DMT when my MS is currently really stable and I feel well?
I’ve had 1 relapse in 5 years which I have fully recovered from. I’ve always been pro treatment and always said I would start a DMT as soon as I could because everything I’ve read says the earlier the better. I never felt that not starting treatment was an option for me. But I have an appointment today, I have to make a decision about which DMT I’m going to start on and I’m suddenly panicking that the side effects of the drugs are going to make me feel more ill than the actual MS and that it won’t be worth it!
Reassurance please that starting a DMT at this point is the right thing to do!!
Hi I am going through the exact same dilemma at the moment. My relapses were every four years from when I was diagnosed back in 2007. I didn’t want to take anything for the exact same reason but since I had my daughter in 2017 I had two relapses in quick succession. Then earlier this year when I was 3 months pregnant with my son I had a relapse and now that he is 6 weeks old I think I’m having another relapses. I feel my MS is progressing and that I should at least give one a go. I’m nervous thought and don’t know what the right thing to do is. I tried copaxone last year but only lasted 3 weeks because I couldn’t handle self injecting. I haven’t ruled out wanting one more baby but I’m going to try Tecfidera for a while and see if the benefits out way the side effects. Basically I want the best quality of life. Just go with your gut, that’s all you can do, no of us know what the future holds and I think that’s the hardest thing about having MS xx
@robean @lpoollou2 I was just diagnosed this year & started on a DMT immediately. The reason, I’m 50 years old and I remember people from my childhood that had MS before many of today’s treatment options. It was so sad to see the devastation that was caused by MS: wheelchair and seemingly totally spaced out with “cog fog” and exhaustion. I feel so fortunate to have options that my beautiful friends did not have many years ago. I feel blessed to have DMT options. I totally understand the weight of your decision, as all DMTs and medications have potential side effects. Good luck with your health & treatment options. Godspeed!