Symptoms
Hi All,
A few months ago I got hospitalised for weeks after lots of symptoms including eventually not being able to get around or use my hand. I was diagnosed with RRMS and recently started Tecfedira. I am a lot better generally from these symptoms but sometimes get new symptoms like numbness in various places and pain in my eyes. I have been told when following these up that this is'normal' and that they don't need any treatment and are not an attack. But it is all new to me and I don't know if I shouldn't be doing something or just accepting all these things as 'not a relapse'. I am really struggling with how to deal with everything - I would really welcome any suggestions.
Hi @rambles and welcome. MS is a condition where relapses can damage parts of your Central Nervous System (CNS), which the brain then attempts to repair. Unfortunately, these repairs may not be 100%, leaving some residual damage. It's this residual damage which can cause "annoying" symptoms which stay with us. We tend to use a phrase, "listen to your body", to help manage our MS. Basically, this means that if our existing symptoms play up, then this is a warning that something is going on that our MS doesn't like. And, it's in our best interests to listen to this warning, e.g. rest if we're tired. Now, if we start noticing new symptoms, that we haven't experienced before, then we should contact our MS Nurse to let them know.
Hi Nutshell and Stumbles. Thank you Nutshell for your experience. I am glad you have not had a major attack for a long time. Stumbler - I have been really low since all this happened but trying to manage everything and it is all new. I thought messing Ms were ones I should tell my Ms team about so I did but they don't think I should get any treatment for them - my eyes and the new numbness. I got told it might be due to changes which will show up on my next MRI. I am not coping well. I am scared all the time and feel very isolated. I can't work or drive and feel cut off from my old life.