We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2024 Shift.ms

@Poppetkara 

Last reply

Poppetkara

How am I supposed to cope with waiting a year to find out if I have MS

I have been told I may have MS but after seeing a neurologist he told me I need to wait a year before having another MRI scan. I don’t feel I can talk to anyone (I’ve told a couple of old friends…one who has Parkinson’s and was very understanding. I feel I’m slipping into a depression with the heavy weight of this. Not sure how to cope. Any advice would be greatly appreciated.
11
@Clary
@Clary
 

Sorry, I have no real advice. Waiting is the worst. It is limbo. I found the time of waiting really hard. Wishing you all the best. You will get through it 💪.

1
@AndreaG
@AndreaG
 

@Poppetkara I'm not sure I understand. The purpose of the MRI should have been to confirm that you have MS. Did they mention a lumbar puncture as well? Yes, they only do MRIs annually but I would either go back and ask for confirmation or get a second opinion. I went for 8 years being undiagnosed with MS, so I would pester and get someone to take notice. The longer they leave it, the more damage could be done and no-one wants that. Make a fuss with your MS healthcare professionals, if that doesn't work then pester your GP.