@Nursiepoos 

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Nursiepoos

Steroids - Crap Gap - Ocrevus

Hi all, my son is due his 3rd full Ocrevus infusion at the beginning of February but is currently really poorly and going through the “crap gap” - debilitating fatigue, nausea, cog fog etc. has anyone here felt the crap gap and has anyone been treated with steroids to help them until the infusion is arranged? xxx
@juliannabfrisch

Hi there! I have been on Ocrevus for almost a year, and the crap gap has been real for me. I get extremely tired, nauseous, and start feeling more symptoms overall than usual. It's usually about a month and a half until my next infusion. I haven't been treated with steroids for it. I usually just hold onto hope knowing that the Ocrevus infusion is coming up. I also don't tolerate the steroid infusions so well, so I kind of try to stay away from those as much as I can. His doctor might be able to give you more advice on if a steroid infusion might be necessary! :)

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@Nursiepoos

Hi, thanks for your message. I managed to get a message to his Neuro but he wasn’t really interested - he just said they were going to discuss his case at their MDT on Tuesday. No advice. :(