@Muffie

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Muffie

Feel low

I feel so low. Really down and have done for a while. The problem is every day things are firing up in my body. Vibrating muscles (all over) aching muscles, aching joints, balance out, vertigo. Twitching left eye. It’s doing my head in! From the moment I get out of bed and put my feet on the floor it starts. All day. Going out walking, mixing with people doesn’t work because no one understands really so I hide how I feel take lyrica and baclofen to ‘survive’, then come home and spend 48 hours physically getting over it. Working out, which I used to love is getting painful. My usual routine that I’ve done for years now leaves me aching badly and weary for 48 hours after. So my question: when you hit a brick wall both physically and mentally how HOW do you cope? I would love to hear from anyone. Judy

ss17

@ss17

Hi @muffie sorry to hear you’re finding things a struggle at the moment and feeling low. Wish there were some magical words I could say to make you feel better. All I can say is while people around you don’t understand how you’re feeling on here we do, so you’re not alone. I find it very difficult when I’m feeling low to do much about it - it’s like a stubborn grey cloud hanging over me. But just like the sun can peek through the clouds I will find something small will bring me pleasure or make me smile...and things feel a little better even if just for a short while. Hope things feel a bit better for you too

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Muffie

@Muffie

You are very kind and took a lot from your words @ss17. Thank you. Yes it’s true that things can turn out better some days I just wish things would settle down but I don’t think my MS wants to play ball at the moment.

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Tracey1982

@Tracey1982

I’m sorry hun the last few weeks I’ve had a uti and had achey legs, severe stabbing head pains,and backache I’ve been in tears many times but I get what u mean, nobody understands unless they have ms! Try and rest your body and mind when u can and try not to let it get u down to much. 😘

Spencerd

@Spencerd

There'll be a day some months from now where you'll think hey! Things were actually pretty good today. Till those times arrive we all need to get through this shit hole covid time together. Trust me when I say, you're not alone here

Muffie

@Muffie

@Tracey1982 thankyou for your reply it is very much appreciated. The ms is there all the time reminding you of its presence and sometimes it gets right through and just wears you down. I can normally overcome the lows but positivity is a bit lacking at the moment. Thanks again.

Muffie

@Muffie

@Spencerd you are right. Things can turnaround when least expected. I will try and wait with patience. Thank you for your reply and positive outlook.

Stumbler

@Stumbler

@Muffie , MS is a huge burden for any of us to carry around and, sometimes, this burden can seem immense. At that time, we can all do with a little something to restore our mental balance. So, go and talk to your Doctor about short course of anti-depressants, to take the edge off things so you can restore your mental equilibrium. It is not a sign of weakness. Also, MS will demand your utmost respect. So, I would suggest that when you hit a brick wall, MS will probably try and push it on top of you! Moderation is key. Additionally, allowing your body to increase your core temperature leaves you at the mercy of Uhthoff's Phenomenon (https://mstrust.org.uk/a-z/uhthoffs-phenomenon).

jen1973g

@jen1973g

For me ignore the world and rest give up your old life yourself so you get back some control because you can’t fight it find different ways to keep in touch and think of new hobbies it will take years to do this btw took me 3 years to stop fighting and embrace a new world Because there’s one sure thing your ms will do it for you and if you fight it to the end it will finish you off . Wrestle with it but don’t fight head on with it there’s only one winner .obs only my take on it doesn’t mean I’m right just wish I knew this 3 years ago .