@LostSpark 

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LostSpark

Newly diagnosed after TN-f treatment

Morning, I am new here and new to this cursed condition. Apologies for the long winded tale I'm about to go on! I was diagnosed with Psoriatic Arthritis in 2020 and was given a raft of poisons which didn't work until I was given the miracle drug Adalizumab. It was a revelation. All symptoms gone, all pain gone, even the quite atrocious nail psoriasis disappeared. Fast forward 3 years and I lose all feeling in my left hand side, like someone has deleted my nerves in a perfect line all the way down from my collar to my toes. Visit various NHS "professionals" only for a Chiropractor in Gateshead, formerly of the USA, (who refused to touch me and gave me my money back) to shout at my GP to arrange an MRI. Panicked messages from Rheumatology and my GP telling me to immediately stop the TN-f drug and wait for a Neurologist. Which brings me to now. Diagnosed at 38 with RR MS and once again suffering with arthritic flair ups with all the joys that come with this. Peripheral Neuropathy is listed as a side affect and there is loads of research articles basically saying that Rheumatological treatments are "causing" MS, yet the NHS will not confirm or deny this. Has anyone else experienced this?
@NatureDeb

no I haven't personally experienced this but you sound like someone who doesn't have much faith the NHS, as I don't 😉

@LostSpark

@NatureDeb I have worked for the NHS and have seen some genuinely great things. But for me they have been appalling. I've had 5 surgeries on my right hand/wrist. Two great, one complete mess and two unnecessary if they'd fixed something 15 years ago they overlooked. My experience with arthritis has been just short of complete negligence and so far my treatment for MS has been so poor, they tried to remove my cannula before I had even had the infusion because they "forgot" I was there and just assumed I'd had the infusion. I also had to remind them to do my obs post infusion. They were quite happy to yank the cannula and send me off.