@KeepSmyelin99

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KeepSmyelin99

What triggers MS?

Hi folks 👋🏻 I believe that my first attack of symptoms was brought on by my body’s response to an antibiotic. I think it “activated” the “overactive” setting on my immune system that caused my MS. Does anyone else think they have possible trigger or triggers that activated their MS? I’m really interested to know what people perceive could have caused things for them. Please comment below with any theories you have (or if you’d rather speak through private message, that is perfectly understandable and welcome too). Really want to know more about others’ experiences and beliefs. Thanks in advance ☺️ x

Highlander

@Highlander

@keepsmyelin99 An abundance of stress and every day life. But who knows....it could be down to being extremely unlucky. Or the wrong day ending in a Y.

KeepSmyelin99

@KeepSmyelin99

Too true @highlander , the frustration is real. Too true...

Elsa75

@Elsa75

@keepsmyelin99 For a long time I was convinced that the 3 month contraception injection triggered my MS because my first relapses coincided with the injections that I began taking after my daughter's birth. I stopped the injections when I realised I felt unwell after the 3rd or 4th but by then it was to late. I mentioned my theory to my consultant once but he looked at me like I was crazy so I never spoke of it again. I don't know what I believe triggered it now nearly 15 years later. I think I am now more of @highlander 's opinion that life happened and luck was just not on our side on this occasion. Keep well and do keep smiling 😄🤣

KeepSmyelin99

@KeepSmyelin99

I’ve not heard that mentioned before @elsa75 but maybe someone else will have thought the same! Like yourself and @highlander say - it may just be our luck in life, but anything is possible so there may well be some significance behind our theories... thanks 😊 I’ll keep smiling if you will! 😂

KeepSmyelin99

@KeepSmyelin99

Hopefully one day @aoife_brennan_1 🤞🏻 That’s a great place to be - adjusted to your new normal and accepting of the fact that you’re here because you’re you! There’s an explanation in there somewhere 😂

Emma_T

@Emma_T

I was in Australia in May for three weeks, went to my friends wedding, had a blast. The minute I stepped off that plane back in Glasgow my eye was weird and got worse as the weeks went on plus other symptoms. 4 months later after numerous MRIs and tests they have said it was optic neuritis and probable MS I’m still waiting on confirmation. I think the flight triggered mine but I think that’s part of the process of justifying ‘why me’ I’m a 31 year old female, from Scotland so I fit a lot of the typical criteria. Is it going to stop me ever flying on a plane again? Probably not, we just need to be the best we can be and live life the best we can! 🙂

KeepSmyelin99

@KeepSmyelin99

That’s so precise @emma_t ! I get what you mean about being on the plane though, it’s possible that you were in an enclosed space with some sort of virus that triggered it? Like you say though, we just have to keep going and living life to it’s fullest whether we know what got us here or not 😂 x

Emma_T

@Emma_T

@keepsmyelin99 Yeah I don’t know 🤷🏻‍♀️ I did think I maybe caught a bug on the plane and that’s triggered it, or the air pressure, or the tiredness. I’ve never been on a long haul flight before so my body was probably freaking out. Never felt right since, although I’ve clinically ‘recovered’ from that episode my life isn’t going to be the same as before I went on that plane 🙄. MS does tell you to listen to your body so me going to the other side of the world has maybe just made it go into overload, Scotland to Australia ‘omg what is this... is it sunlight??’ Haha.

ItsMewithMS

@ItsMewithMS

I think there was a thread on this last week....maybe there is a thread of this type every week ;-0 but the question was if you had ever had a high fever, especially from Epstein Barr virus. I know I was exposed to the virus while in middle school but never remember having it myself. I don't remember any high fevers. I typically don't get sick from anything...well except for strept throat when I was in middle school. Got that every year and they never removed my tonsils but threatened each year! It seemed from last weeks posts that MS often followed 10 years after a high fever.

KeepSmyelin99

@KeepSmyelin99

I know @emma_t 😂 sunlight and heat and proper bbqs - a shock to the system!

KeepSmyelin99

@KeepSmyelin99

Yeah @itsmewithms Epstein Barr/mono/glandular fever seems to be a hot topic when it comes to the cause of MS. I’m similar to you - never had a high fever at all but still somehow here 😂 no idea if I was exposed to Epstein Barr though... I’m just really interested to see what others think may have triggered their MS, because there are plenty of doctor theories which are being explored in research but nobody actually knows our experiences better than ourselves, us, the MSers 😊 x

PeterFrancis

@PeterFrancis

@keepsmyelin99 A mix of already having one Autoimmune condition, been a T1 Diabetic since age 11, bad luck and Psychological issues, not that I suffer from any mental health issues... that I know of anyway. I've just found life to be a futile chore for the most part with not a great deal to be positive or happy about, an unending struggle if you will. Of course this is all conjecture and it could just be all random a lot like existence itself.

KeepSmyelin99

@KeepSmyelin99

Totally @peterfrancis - random is very possible. One of the weird things about human beings is that we constantly search for pattern or reason in everything. I hope however, that you can find something in this life that relieves your struggle. X

DominicS

@DominicS

No one knows for sure. Contraction of the Epstein Barr viruse is growing in credence but there are still ome strong opponents to that. it is the million-dollar question and when the answer seems simple (a jab of some kind...it usually isn't) I know that I had my worst ever fever a few months before I started to have the symptoms that led to my diagnosis. Whether or not it is linked is purely anecdotal on my part. There is no firm ex=evidence. FWIW - you'll go mad trying to answer the question. Live life, get the best care you can.

DominicS

@DominicS

No one knows for sure. Contraction of the Epstein Barr virus is growing in credence but there are still osme strong opponents to that. it is the million-dollar question and when the answer seems simple (a jab of some kind...it usually isn't) I know that I had my worst ever fever a few months before I started to have the symptoms that led to my diagnosis. Whether or not it is linked is purely anecdotal on my part. There is no firm ex=evidence. FWIW - you'll go mad trying to answer the question. Live life, get the best care you can.

DominicS

@DominicS

FFS - I think the inability to type is definitely a symptom. My computer is probably against me too. A special cyber-attack on little 'ole me by Big Pharma ;)

KeepSmyelin99

@KeepSmyelin99

Haha @dominics - maybe it’s the technology that causes it?! 😂 Definitely not gonna stress about what caused it because nobody can go back in time, but I’ll always be curious!

GlawsDan

@GlawsDan

First attack one month before the birth of my first born, second attack after birth of second child. First one was stress re not feeling prepared for what is about to happen, second one was realising what i’ve just done! Dan

KeepSmyelin99

@KeepSmyelin99

Stress is a really prevalent trigger! Aw I hope that the stress has dies down now that both your children are here @glawsdan 😂

Negimaru

@Negimaru

Hello. Everybody with MS has there own theory about this interesting subject. With me I think MS starts when your immune system attacks a common childhood virus. After destroying the virus the immune system keeps fighting a virus that is not there so it attacks you. The virus somehow altered your immune system. Just my thoughts. Take care XXX

KeepSmyelin99

@KeepSmyelin99

Thanks @negimaru ☺️ interesting theory!