Support network/friend group
Hi everyone 👋 I was wondering, how have you found building a good support network, and do you have a group of friends who have MS, who 'get where your coming from'? I regret not signing up to the buddy network on shift.ms after I got diagnosed (I don't think I really accepted it at first to be honest) and now 2 years on, although I have the best husband and parents (along with a few others) I feel like on the whole I don't really have people to talk to/open up to about things, and know nobody personally with MS. I don't think the whole covid thing has helped (as with all of us) and now, my love, my passion and my inspiration..... travelling, has been taken away from me aswell (I have not had the vaccines) and I find myself getting angry a lot recently. Anyway, sorry for bleating on, I'll shut up now 🤣🙈 Just intrigued as to how some of you may have gone about building that support around you.
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I'm antisocial at the best of times, so I'm not going to be of much help, but I didn't want you to think that we were all ignoring you! I see my mother once a week, my son twice a week, and my daughter once in a blue moon. Sometimes there's a neighbor to wave it. That's the sum total of my social life, and sometimes that's too many people! The best I can suggest is to find alternatives to traveling. It won't be easy, and you may always feel that sense of loss. Have you considered a blog about your past travels, watching TV shows about places you haven't been, reading travel guides, making scrapbooks focused on the trips you've taken? Have theme nights for dinner based on favorite locales and the food you ate there. Acquire pen-pals from the countries you liked best. I was very much an outdoorsy person and spent most of my life roaming through the woods. I can't do that any more, and I've never gotten over it, but I do find joy now in watching nature from my rural back porch. I bought decent binoculars and some bird books, and while I don't know the different between a wren and a sparrow, I do have fun looking for the bright birds or anything different. I took an online class about tree conservation and how to identify the ones around me. I've been reading up on the medicinal weeds that grow around my house. I may not be able to get into the woods any more, but I'm finding ways to bring it to me, and it really does help a lot.