@Jevv 

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Jevv

Intro i guess

I dunno if its the rite forum for introducing urself. Sorry in advance if its not! Hi, im Jev im 35 years old now and I would like to introduce myself and maybe someone would like to have a chat with me. Why now again? Well i dunno, maybe at this age loneliness kicks in? I have been alone for almost 10years. Alhough, i dont think im suffering from loneliness, i think im fine on my own. Maybe i am subconsiounly? I spoke to a lady not long ago, she is about my age, i knew her from last year but this year i found out she also has MS(not as bad as me obviously, dont want to be a drama queen, but i seriously doubt there r a lot of people with MS who r similar age, and their con is as bad as mine) and because of this knowledge we kinda got closer together and she inspired me to reach out to other sufferers. Maybe ill find a compannion? Who knows… Im not looking for a partner or anything like that, it would just be great to find like a chat companion with whom i can share all the pain of living with this condition and some happy moments in life(there arent many, but still something to talk about). I honestly dont need any “hugs” or “love” or anything like that, i would just wish to find someone who can listen and understand. I think i myself not a bad listener. I love going out and exploring on my mob. scooter and taking pictures. Im a huge music fan and just cant live without music! I listen to anything from Metal to Rock. I usually stuck with one band at a time. Currently im stuck to a Scottish band called Frightened Rabbit. I love art! Galleries, St. Art, any kinda of art! Also, i think im quite a spiritual being, i just believe tha there is more to life than we can see and touch. Im a white European male, but spiritualy, i think im closer to Budhhism, Yogis etc. So these r my interests, nothing much exiciting… I been on and off various forums, and always ending up abandoning them because the content is not really interest me. I dont think i need help, just someone to share our pain of living with this condition. Its not like im a lone wolf, i have many friends, but i dont think they understand whats it like to live with this condition. Even if they really want to. I prefer to go out on my own, and listen to my fav tunes.
@Helen_Weeks

Hey Jev, I’m Helen , I’m 41 with secondary progressive now. I understand why you feel fed up for sure. I have a husband and 2 children and a lot to be positive about. I used to work as a nurse but took medical retirement last year when I failed a driving assessment. I have many friends but am self sufficient. I would nt say I am lonely but I do miss the life I used to have and my independence. Life is different now. Me, my husband and my 11 year old daughter all have Covid at the moment so are isolating separately in house. I have a 7 year old son on his own glued to his iPad. I was so bad on Friday I could nt stand up or move myself but luckily the antiviral tablets seem to be helping and I have started on baclofen because I was so stiff I couldn’t move. God bless the nhs! I can chat with you and be a companion of some description xx

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@Helen_Weeks

@Ralphh