Joint pain
Hi everyone, I’m new here and very happy to have found this community!
I was diagnosed with (RES)RRMS after my first relapse in October. I started on Tysabri infusions last month and my daily symptoms are still very present.
One of the worst symptoms I’m experiencing is a burning like pain in both of my knees. At its worst I can’t walk due to the pain, at it’s best it’s just a warm feeling and I can get on with life normally.
I mentioned it to my MS nurse and she has said it isn’t an MS symptom or a side effect of Tysabri. I feel really confused and a bit invalidated by her response.
Has anyone experienced similar symptoms? Am I going mad? Is it unrelated?
Appreciate any thoughts!
Cheers,
Elly
The epistemic injustice in the healthcare system is shocking. My neurologist told me that my persistent optic neuritis is a sign of Long Covid and not MS even though Ive had the symptoms pre-Covid. You know your body better than any neurologist or nurse, if you feel like something is off, more often than not, you will be right. Try looking into fibromyalgia, I was told a lot of my symptoms that aren't direct symptoms of MS are symptoms of fibromyalgia.
@_hanna Thank you so much for your reply, I never considered I might have something else on top of MS but now reading about fibromyalgia is looking quite familiar. I’m going to speak to my GP. Thank you again!