@Ellyrose 

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Ellyrose

Joint pain

Hi everyone, I’m new here and very happy to have found this community! I was diagnosed with (RES)RRMS after my first relapse in October. I started on Tysabri infusions last month and my daily symptoms are still very present. One of the worst symptoms I’m experiencing is a burning like pain in both of my knees. At its worst I can’t walk due to the pain, at it’s best it’s just a warm feeling and I can get on with life normally. I mentioned it to my MS nurse and she has said it isn’t an MS symptom or a side effect of Tysabri. I feel really confused and a bit invalidated by her response. Has anyone experienced similar symptoms? Am I going mad? Is it unrelated? Appreciate any thoughts! Cheers, Elly
@_hanna

The epistemic injustice in the healthcare system is shocking. My neurologist told me that my persistent optic neuritis is a sign of Long Covid and not MS even though Ive had the symptoms pre-Covid. You know your body better than any neurologist or nurse, if you feel like something is off, more often than not, you will be right. Try looking into fibromyalgia, I was told a lot of my symptoms that aren't direct symptoms of MS are symptoms of fibromyalgia.

@Ellyrose

@_hanna Thank you so much for your reply, I never considered I might have something else on top of MS but now reading about fibromyalgia is looking quite familiar. I’m going to speak to my GP. Thank you again!

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