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@DoritoLover22 

Last reply

DoritoLover22

Venting...

I don't want pity. I don't want sympathy. I don't want to be dismissed. I don't want others (who are NOT doctors or medical professionals) to "diagnosis" me. I don't want the "Google definition" of what I'm experiencing. I want to be heard. I want to be validated. I want to feel like "I'm not the only one going through this." I want empathy. I want to feel connected to others who are struggling in the same way that I am. I want to feel "normal," whatever that means. I want to be able to do what I want to, when I want to. I want some sense of control over my body. 😔
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@HeidiHelps
@HeidiHelps
 

Are there any MS Support Groups available in your area?

1
@Rounders
@Rounders
 

@DoritoLover22 you are not alone hun. Before I had my first episode I played semi pro football as well as Sunday league Coached an under 10s team mid week.. Once I was discharged from hospital after episode ( lumber punctures, steroids, bloods etc etc) I was discharged without ms diagnosis but demylination... Ms label few months later. I apologise for the long message... but I feel I know experienced what your going threw. The assessment before I was discharged, the doctor told me I'd have use the walking aids for several months... me being football oriented I asked when I'd be able to play again to be told I may never have the physical ability to again.... I was broken football was my way to release my aggression as well as I was pretty damn good at it... They discharged me with codeine more than they should have... I felt my world was shattered, I couldn't have a normal life and I didn't want my pride taken away from with people offering help etc or seeing me as weak so I took 43 of the codeine hoping and wishing I wouldn't wake up... I didn't sleep in fact they kept me awake due to throwing up... Then few days later I started scrolling forums etc and realised that's it was selfish if me to feel pity for myself when there's people out there worse off... yes I have the common symptoms but there's people (with MS or other) that have to depend on others as they have no choice or they don't have no one.. I can lead a semi normal life and hope for it to remain the same.. there are others that would give anything tk have that and they haven't.. so I'm extremely lucky

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