@Colleeny

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Colleeny

What were your first symptoms?

I'm 25 and my mother was DX before I was born. It's been 5 years since she has passed. I feel as I'm having symptoms but not sure. Maybe it's all in my head and I'm just worried for nothing. I've had bad headachs since I was very young. But the last 2 months I've noticed something's. Stiff fingers, slight numbness, tingles and my left foot had a crazy spasm. Everyday for a week now I've had my leg or arm fall asleep I guess you would say. My balance isn't great but maybe I'm just clumsy. I haven't had any blindness or fallen. What made you get tested for MS or knew that something wasent right? Thanks in advance

Stumbler

@Stumbler

I can understand your concerns. Here's a quote from the MS Trust Website :- "While MS is not hereditary in a strict sense, having a first-degree relative such as a parent or sibling with MS increases an individual's risk of developing the disease several-fold above the risk for the general population" Personally, I'd make a list of these symptoms and then go and have a chat with you GP about your concerns. Frequent bad headaches should be investigated anyway. Yes, the symptoms you're experiencing could be attributable to MS. BUT, the symptoms could also be attributable to a myriad of other conditions from a vitamin deficiency forwards. So, a chat with your GP is in order. Hope this helps

mendozaj72

@mendozaj72

My first symptoms was my left arm going to sleep on me all the time. Then my left leg. This goes on till this day. My body gets so restless its difficult to sleep sometimes. Then I started having a speech problem that got worse over a course of four years. Headaches, weird pressure feeling in my head, weak legs and difficulty climbing stairs, dizziness, unbalanced at times. And feeling fatigue. No one in my family has MS but as of a month ago my sister who is a year younger than me is starting to experience similar things. Hopefully its not MS.

ALLAN43

@ALLAN43

as Stumbler advises, go to your GP with all your symptoms and concerns. Don't forget to let him/her know about your family history. Don't forget a lot of GPs don't understand MS so don't let them fob you off. Just remember every person on this site, their illness starting out and now is and was different in many ways.

loulou

@loulou

Hi coleeny put this in the search bar "what do you believe triggered your ms" may be of some interest to you and yes tototally agree with Allan43! I would also get two Doctors opinions x

Cazzzzzy

@Cazzzzzy

Mine started with problems in my legs and coordination, in 2005 I went to the doctors with MS concerns... My symptoms got worse and worse (not just leg issues but also came all the other joys of MS :( )...They fobbed me off for years until I couldn't walk & January this year I was diagnosed... Just make sure they check you thoroughly! Go with a list of symptoms and also a list of all the tests they need to carry out! ~ With your family history they need to take you seriously!!! All the best & I hope you don't have MS but I seriously don't want anyone to suffer the years I had to! Good luck xxx

daliaghandour

@daliaghandour

(forgive x my Engl)I do not know when it became. I was suffering of incontinence, all the time Iwas very tired (it has passed few years like this)don't pay attention try to follow with my studies and activity and some day I become to see less in the right eye . Then a doctor send me to the magnetic resonance and all the demyelination appeared. Now I try to take care as all my simptoms are not in view (now). and when it become worse, go to the hospital 1 week and receive corticoids. It happen every 3 months. Medication? I tried with betainterferone 1A few months but I become worse difficulties to walk, change x copaxone, I am better but I still have the same.U have to go to the doctor Neurologue and if he/she diagnostic no normal things ask x the RM. Good luck

scarletmartina7

@scarletmartina7

mine was terrible vertigo, blurred vision. best wishes xxxx

daliaghandour

@daliaghandour

U tru, I forgot, before lose the view, I feel same like U terrible vertigo x weeks I went to work with slipper but nothing arrange it. all stop when they discover me EM and began to send me corticoides. Thanks to maintain contact.

kerrylousie

@kerrylousie

I woke one morning to find i couldnt speak and i had paralysis on my left side, they originally thought i'd had a stroke until an MRI showed different then i had a lumber pucture and a 2nd MRI which confirmed MS but everyone who has MS are so different to each other. You can't listen too intently as like everyone else says it may be something else so please go see GP before you worry too much

cameron

@cameron

I was on a mountain climb when my right leg wouldn't lift up. I ended up falling badly - twice - and had to be manhandled off the peak. Ghastly.

Colleeny

@Colleeny

Thanks everyone. I don't have any insurance and was just denied for free health care because I make $30 too much a month... So I'm looking for insurance before I see a dr and get any test done

Colleeny

@Colleeny

Yesterday at work my leg almost gave out 3 times I had to lean on the counter till it passed. And I've had a sort of shooting pain in my fingers, so hopefully I'll be able to get things sorted out with health insurance and see a dr

Hayla

@Hayla

I am newly diagnosed (10/2012) and am not sure when exactly it first started but my bet is 2011, when first I started feeling numbness in my hands (it would come and go suddenly) and my strength to grip was close to none existent. With that came the fatigue, at first it was only slight and I didnt really pay attention to it became more and more crippling as the time went by - started in May and by December I would get overly tired by the simplest things. In October I had about 3weeks where I could hardly maintain a conversation with anyone. My brain would just go blank on me constantly, my ability to pay attention && short term memory on conversations was almost none existent. I was a 'communicator' both in my professional && private life, so u can imagine how scary it was when suddenly my brain seamed muddled and I couldnt find the /right/ words to express anything. -.-' I shackled all those symptoms to Depression as I had had severe depression when I was younger. In February my left arm started going numb with shooting pain through it at the same time, I would experience it bout four times a day for 10mnts each time. Then in June2012 I suddenly woke up with a weird pressure in my left eyeball, and with less definition on my eye. That was what made me run for the ER. After some tests they came to the conclusion that I had to stay in to take the corticotherapy (or whatever the word it is in english) and make more exams. After a Lombar Punction, MRI's and many other tests they found some lesions on my brain. That was when they first talked bout MS even through and according to the docs it was a far fetch possibility because I probably only had a 'simple infection'. In the 3rd week of July my legs, from hip to toes, went numb and whenever something colder came in contact with my skin the pain would be excruciating (it feels like Im being 'cold burned'), as I couldnt feel my feet I barely had any equilibrium, after about 5mnts walking my legs would start to hurt more and go rigid and I would be completely exhausted. I went back to the ER and the doc still was convinced that what I had was a 'virus caused infection', but I went through all the exams again, LP/MRI && so on and it turned out I had more lesions on my brain and a new lesion on the spinal cord. That was when I was attributed a supposed MS specialist. I was in for another week, and by the end of August they had decided that I should start on Extavia in the beginning of September. In the end of November the right upper side of my face went numb and I could barely open my right eye. I went to the ER and they said that it was a minor lesion so they sent me home with the indication I should talk with my doc to change drugs to something stronger. In the beginning of December the numbness extended to the cheek and right side of my mouth. I went to the ER and they kept me in for 2nights for observation. The doc attributed to me at the hospital refused to change the drugs I was on /AND/ to give me the official diagnose report. That was when I went to see another doc for a second opinion. To say that the approach is completely different is an understatement. Ive changed hospitals and will start Tysabri next week. Hopefully now thigs will go more smoothly from now on. As for u, please do go see several doctors and, as a personal advice, always follow ur instinct. If u feel that the docs approach isnt right for u, go find another doc and hear whet he/she has to say cause even between specialized docs there are some differences in procedures.

Cazzzzzy

@Cazzzzzy

Sorry to hear your story Hayla.... Unbelievable how doctors let this happen... Drives me bloody mad!!!!! Colleeny ~ How are things with you? I hope you're ok! xxx

jojo75

@jojo75

Hi reading all the replies it all seems quite varied.. 2 years ago I had a numb sensation in my foot and lower leg. I went to my gp 4/5times. In the end he said I should have mri in my lumbar region. In the hope it was a trapped nerve ha ha!I pushed to have brain mri when asked why I said because my dad has ms. My gp said very unlikely! I thought he was going to cry when he told ne kept sayin'i can't believe it' I put my hand on his and said 'its ok!'. Anyway saw a neurologist in the July and was told it wouldn't be confirmed until I had more symptoms. Was then pregnant and had next attack last april and started meds. My balance has always been a issue linked? We will never know. Hope it all goes ok. Jo xx

Hayla

@Hayla

<a href='https://shift.ms/community/people/cazzzzzy/' rel='nofollow'>@Cazzzzzy</a> Well to say Im absolutely livid/enraged with the way she (the doc) acted with me is putting it mildly. A docs first priority should be the well being of the patient, not how much she can save the hospital/government by putting the patient on a weaker&&cheaper drug instead of the one he/she actually needs. According to my new doctor (who is one of the lead MS specialists in the country) I should have made the tests to start Tysabri as soon as the July 'crisis' started, so by mid-August I would already be on it....but instead they decided it was a great idea to stall with bogus exams & cheaper drugs. But hey they need to cut on the heath expenses, after all, and as Ive only got sensitive sequels && am young what are some more unnecessary lesions - with or without symptoms - to me?? -.-' Ugh...sorry for the long rant but this seriously pisses me off!

Hayla

@Hayla

<a href='https://shift.ms/community/people/jojo75/' rel='nofollow'>@jojo75</a> Im sure everything will go smoothly from now on, just have faith and keep following ur instincts.

Daedana

@Daedana

My first symptoms were slight malfunction of my eyes'. Fortunately that passed really fast, the second one was double vision. It isn't really likely that you would have ms, but check with your GP about the headaches.

SophieShift

@SophieShift

Off the back of conversations like this, Shift.ms decided to create 'Animated Symptoms' with members of the community. You can watch the series here: https://www.youtube.com/playlist?list=PLm0sRroMtds0GhyVCQcb8MuGWio4nDD0C From fatigue to feeling, tingles to tremors, Animated Symptoms sets out to capture stories and experiences told by people living with symptoms of multiple sclerosis (MS). The goal is to help communicate sensations and realities that someone living without the condition would struggle to understand. Shift.ms wanted to portray these in a way that felt relatable and human. “By animating experiences of symptoms, you can show people what’s really happening to you and help other MSers recognise symptoms” Grace, MSer Shift.ms captured case studies from a range of people with MS, who spoke frankly about how MS symptoms affect them on a daily basis and gave advice to other MSers dealing with these symptoms. The video series provides MSers with patient-led references, which will inform them on how to recognise, report and communicate new symptoms to their MS team.

andmasta

@andmasta

My first, memorable, symptoms started early/mid 2005. I was really stressed and in a very strange place mentally. First signs were waking in the mornings with my tongue edges and inside of my cheeks being chewed up. It went on for a few weeks before one day on my way to work, I lit a cigarette and felt a weird 'click' in my head. Went to a doctor and he looked at me weird when I told him what was happening, but still gave me a referral to A&E. From there they referred me to neurology and by March 2006 I'd been diagnosed. Thinking back there was a time in the mid 90's, when I lived in London, that I'd randomly had numb feet, but was working as a runner so thought it was down to walking around a lot. There are times I wish I hadn't chased up what was wrong, but certainly better that I did. I still go to that doctor to this day. He essentially saved my life and my sanity. I had been to two other doctors that I'd known for years who had both told me it was nothing and to grow up. I have stayed away from all types of meds since diagnosis and had hoped that I could keep going that way by doing it with holistic methods for the last 14 years, but it seems that the MS is catching up with me and I'll be starting treatment in the coming weeks.