Waiting!
Hi everyone, this is a bit of a rant. I am so fed up with waiting. Waiting for tests, MRI s, appointments and treatment. This is definitely why we are called patients. I think my patients is already running out. Unfortunately, there is little choice unless I have money to pay for treatment (which I really don’t). I feel like I am hoping for a miracle 🤞.
It’s worse at the moment isn’t it because of COVID and backlogs - it’s really sad. I’ve worked in the system 22 years and it makes me sad to see how little support healthcare is getting right now. I am very familiar with the system and sadly I still find myself highly frustrated with the wait myself and also seeing the team I work with stretched beyond anything I’ve experienced in my career. I have considered paying private for my 1st MS neuro appointment too, but I feel like a sell out as I’m such a fierce advocate about fair access. My 1st outpatient appt Is in 9 months time!! …1st appt and I feel my resilience this week is being tested to the max with the return of m nerve pain and pins and needles!!! It sounds awful but I think we may just have to make a nuisance of ourselves by keep asking about cancellations and appointments. I am waiting for physio too, I have some atrophy in my right leg and I really want this physio as it’s making me quite anxious to get the strength back and to make sure I’m doing the right exercises to build it back up. Good luck and I think we have to advocate for ourselves In this situation and keep pushing and trying also to focus on the things we can do ourselves too. I’ve started yoga (quite unbelievable for this around me who know me and that I can’t switch off!) and I’m trying hard to get back on my healthy eating plan after shovelling more heroes down my neck than supplements over Xmas
Yep sadly soooo true @Clary and Im unfortunately in a similar boat so yep fingers and toes crossed but lol RE patients. @WooJB totally get the reluctance to have put ones principals aside (it really doesn't come easy) and 'have' to pay. Because there was no neuro physio available in my area and I get private health care 'provided' through my employer I eventually felt I had no choice but to come to the conclusion yep I will ring them and get some private neuro physio only to be told they wouldn't cover neuro physio as it is deemed related to MS (which they class as a chronic illness) and thus exclude. Having ranted at them about this I was firmly told however they would be 'happy' to treat me for anything they did not consider related to my MS for example an ingrowing toenail. I would repeat what I said to this but lets just say it wasn't 'positive feedback'.