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We've got this...

It struck me this weekend that people with MS are actually probably particularly well equipped to deal with the coronavirus outbreak. Compared to the rest of the population, we are all used to: - Being stuck in limbo, nobody can ever tell us how long something will last and if it will be permanent, temporary, relapsing remitting or progressive. - Living with uncertainty: We all know only too well that nobody can predict what the future holds for us and that we have to plan as best we can, but always live in the present. - Listening to our bodies and struggling to decide whether our latest symptom is something to be worried about or not. - Trying to interpret complicated, evolving and occasionally conflicting medical advice. - Appreciating that there is general guidance but we are all different individuals and each have to make choices based on our personal circumstances and our own assessment of the risks. - Self isolating/adopting good hygiene practices to avoid infection, usually depending on our choice of DMT and how long ago it was and how we are feeling. - Adapting and working around constraints and not always being able to go out and do everything we want, when we want. - Sharing information and best practices at a local and a global level, so we often know as much or even more than the "experts". - Acknowledging that bad things outside our control will happen and supporting each other to get through the tough times. - Belonging to a community that does not rely on regular face to face contact. - Maintaining our sense of humour. - Building resilience. Coronavirus? Everything is relative. MS warriors, keep calm, I think it's safe to say we've got this one.



It is rather, good post :-)



@clare80 So true.... Better to say we can Handle this.... I really don't want to get this one ๐Ÿฅบ Just being facetious๐Ÿ˜„



@highlander, yup, fair enough, good point well made!



Love this ๐Ÿ˜๐Ÿ˜๐Ÿ˜



I LOVE this! :)



EXACTLY! I'm not freaking out like those around me because I deal with these CRAZY issues every day of my life!



Thank you @clare80 - I needed to read this. Brilliant post. I've bookmarked and will be sure to refer back if things feel like they're getting too much in the coming weeks. Thank you



@clare80 This is EVERYTHING ๐Ÿ™Œ - thank you for the perspective! ๐Ÿ˜



Great post. Well thought out and bang on. Thank you for sharing.



So right. I said at our Wobble (MSrs meet up) on Saturday that we MSrs probably stand less of a chance of catching COV-ID 19 as we already practice the guidelines laid down



@clare80 Bang on point๐Ÿค”



๐Ÿ™ well said. Keep strong folks x



@clare80 fantastic post, made me laugh and realise it is so true. Stay safe guys



Spot on, brilliantly written. ๐Ÿ˜ Ride these rough waves everyone, stay safe and as healthy as you can be. xโœจx



Incredible post!! Amazing comparison - I love it @clare80!! Thanks for sharing. Totally agree with all of this... Stay safe, beautiful people xx



Oh my days! This is amazing! Now if only I can find a way to share it with the rest of the world!... Stay safe everyone!



Thank you for putting this in writing so eloquently. Together we've got this x



Thanks for sharing, this really is one we are totally familiar with, the isolation thing isn't such a shock to me like everyone else ! That doesn't have M.S I mean! Stay safe x



@clare80 do you mind if i copy this post into my works intranet site? well written and points well made.



I love this! Is there a way to share this? It's written very well. ๐Ÿ’•



@clare80, beautifully put. Keep going, fellow warriors :-)โ€ฆ...



@clare80 How everything is written correctly. My husband is worried, however I am calm ๐Ÿง˜. I survived my fear two years ago .๐Ÿ™‚



@ Clare80 you nailed it writing this article! My daughter said to me yesterday that I wouldnโ€™t have a problem staying at home for 12 weeks and self isolating as sheโ€™s never known someone to be so comfortable just staying in! Itโ€™s obviously from all the months last year that I was relapsing and you get used to just being at home!! My problem is my son age 20 meeting his friend to play tennis and thinking that itโ€™s fine!!!



@clare80 Brilliant post! Got to the end and nearly burst into tears ๐Ÿ˜Š You're pointing out the things that we do everyday but don't think about it. Stay safe everyone. x



I love this! I am due to give a talk to Sunday Assembly London this Sunday. It was going to be about dealing with my MS diagnosis and using running to cope. And how three of us were planning to run the West Highland Way and raise money for Shift.ms over Easter. Now it's going to be about what I've learned about coping with uncertainty and adapting change through having MS.



All completely true @clare80 & wonderfully calming to read ๐Ÿ˜Š Thank you



This has been such a helpful post for me @clare80 trying to channel the positive energy! X



thank you @clare80 and all you others here on shift.ms. It's good to know we're here! For me, just today, whilst at home with my two sons and learning how this home ed'ing thing works, i thought i'm in a surprisingly good mood! The sun helps lots of course, but i also realised i was at home with my children having a great time because i didn't have any guilt about being somewhere else with them! You parents out there know how it is at half term when there's a science fair or skate park thing or just a gathering - there's the worry leading-up to it; will i have enough energy, the stress on the day, the brave face, the getting home before you're just too tired to even gather-up children! etc etc! Today i couldn't be anywhere and that wasn't because MS had decided that for me. For us, my children are dictated by it too sometimes. Not that any of us want Coronavirus in the world but hopefully this pandemic might remind me that the children and me have a great day at home too, who ever decides it! Long may that sun shine! Get out in the garden or lean out a window with sleeves pushed up, palms up and get your Vit D guys! love to all xxx



I love this and no I do not fear have been living like this for 23 yeas. Well written and said. Must copy this



Love this post!!! It made me realize just how right you are. Thank you for making me feel a little better about this unprecedented situation. Love to all!



I'm OK, I've never eaten bats ;-)



Yes, I love this. I actually feel under less pressure to "conform" . I can stay at home and enjoy the situation. People say 'Keep busy' or "occupy your time' I have no trouble doing that plus when fatigue takes over I can stop anytime. Time to smell the roses or just enjoy them and the important ones in our lives. Take care everyone and love to all.



@claire80 Yes! Yes! Yes! Love this!



Very well said and written. ๐Ÿ‘๐Ÿป



Preach!!, u get used to staying in ya right. I did some washing this morning bits with the kids I'm now resting. Id be doing school run rushing around here and there with work. Our bodies need calm



@clair80. Wonderful! So good to know that others have same symptoms as me. Pp. Even though nothing will make it better. Still don't understand why just putting my hands on something puts strength in my legs! Wall/furniture walking. We can use what we've got. I do gardening and vacuuming on my knees. Stay as independent as possible. I try to just laugh when seen crawling round the garden as might not be able to do it tomorrow! Or ever:(.



Love and kindness to you all, and you right, we are used to this isolation over a long period, and we are usually good at getting through/ over demanding, scary times. I'd just like to say,keep strong, safe and dont loose your MS sense of humour. Please share with each other your high's and low's and dont be afraid to ask for help when you need it and give it when you can. Metta to you all! Rocky Ranger ๐Ÿค—



@richard, @fuglymanorart, if its helpful, this post has been turned in a blog post which is easily shareable here: https://shift.ms/we-can-handle-this



Wow, thank you everyone for the amazing feedback. Am so pleased this post resonated with other people. @debbi_smith_dawson, @richard, @fuglymanorart, of course am happy for you to share. @amyshift has cleverly turned it into a blog post for you, see her comment above. @fingersandtoes, good luck for your talk on Sunday, sounds like it will be awesome! @is0bel, glad you had a great day at home with the kids, without feeling pressure from other people to do things. Hope you enjoy this precious time together. We can't control the current situation, but we can choose how we react to it. ๐ŸŒˆ



Awesome thread, I was wondering about this recently as changes in work patterns (permanent working from home) have helped with MS fatigue. My work colleagues have never had to deal with isolation and uncertainty while MSers have definitely adapted over time. Cooler sunny weather has helped too.



Absolutely fantastic piece - sums it all up. I wanted to know if it was possible if I could chat to you/interview you - as I wanted to write a piece for the Barts MS blog - about this way of MSers looking at COVID-19. I write regularly for them - and would love to get your background re - what made you write this...etc Would you be at all interested? Best, Rachel



Thanks @longboat, will reply privately.






So very true and well written. Here is a link to an article I wrote on this topic.... https://www.linkedin.com/pulse/multiple-sclerosis-covid-19-upending-normalcy-between-hirsch-ph-d-/



@clare80 only just seen your post - BRILLIANT ๐Ÿ˜Š๐Ÿ‘๐Ÿป Friends ask how Iโ€™m coping I say โ€˜itโ€™s not much different from normalโ€™. For the very reasons you so eloquently state. Spot bloody on! xx



Thanks @merfield, glad you liked the post!



I totally agree.




Thank you. I keep my panic to myself and donโ€™t share with those around me which is often scary without a pandemic. This helped me refocus I will also refer back to this when Iโ€™m in a spiral again Thank you




All so true great post.




This is such a great post X



Great post and so true



Don't really know what this is



So true. Thank you for reminding us all




This a make a me a happy-er. Cheers for this.



Got all excited when I mistakenly thought this said being "used to restraints", Then I realized it was CONstraints - makes more sense in context, just not as entertaining.