Working
My self-employed, business of 14 years has gone down the drain since I became poorly with MS and I’ve been out of work for about a month and a half. I am literally going out of my head. I’ve worked since I was 16 years old and now I’m 42, so not working is a new and not very pleasant experience for me, not to mention the fact that as a family we are broke.
I saw a full-time job this morning, 9:30 am to 5 pm Monday to Friday less than a mile and a half away from home, doing admin I’m running an office which I would be good at and which I would love… how do people with MS hold down, full-time jobs?
Just in the next month alone, I have three appointments coming up at the hospital, one which is an all day job and the other two are good half days.
How do people take time off for things like hospital appointments? I have to spend a day in the hospital every three months for the next year and a half and after that am I end up getting a stem cell transplant which would mean months off work.
I don’t want to start a new job and have to let people down but I want to earn some money.
Who would even employ someone who has a nurse when there is a risk I will need to take time off work, either for hospital appointments or because I’m struggling with tiredness.
Feeling sorry for myself today. The kids are off school for six weeks and we’ve been sat in the house for two because we have literally no money. We are going on a cheap caravan holiday next week but again money is going to be really tight.
Being sick is bad enough without having to worry about money all the time. I do get the lowest daily rate of PIP, but that’s not about a quarter of what I used to earn a month.
Ideally, I guess I’d love to be able to work from home doing an admin role and be able to work the hours as I want to work them. So if I’m having a good day I could work all day and if I’m having a bad day I could get a couple of hours and then make up the time of the day in the week?
I am a qualified bookkeeper bought my cognitive issues have made it hard to keep up. Maybe I should have a rethink?