I really need to vent. Today is the 2nd time when my annual clinic appointment which was then changed to a 'phone appointment ' and for the 2nd time I didn't receive any call. I would just put it down to typical HSE admin nonsense but I've been hospitalised with sezieures twice in recent months so naturally I would be quite anxious to speak to my neurologist but I really feel like I don't matter , because I'm able to walk. The pain is getting too much at this point. I just want to be heard at least once. I just want a little help and not be given a bunch of orders. I'm really down because of today