Tecfidera advice
Hi,
my MS nurse and neurologist have told me to take Tecfidera, after my last relapse before Xmas. Have read the information given and recent posts from some who are on it. To tell you the truth the more I read, the less I want to take it. Am I the only one with the attitude that I am well so why would I want to take a drug that will give me more symptoms. I go bright red in the face already when I get stressed/wound up.
Argh! !!!!! Damned if I do and damned if I don't. So much easier if on diagnosis they gave us a crystal ball and then we would know for sure if we were doing the right thing.
@samyj , if only life were that simple? As we can't foretell the future, we just have to try and ensure that we don't reach a point in time, where we have to say, "if only..........."
To give another point of view, you might not have any side effects. I've been on Tecfidera for a couple of years. My very first dose I went bright red but since then I've only had very occasional flushing, maybe 3-4 times in a year, usually when I haven't eaten or have taken it late, and no gastro issues. The thing with side effects is you're more likely to read stories from people who have had them, so it can seem like everyone who takes the drug suffers from them. When of course the people who haven't had them don't post because, well there's nothing to talk about! It also helps to remember that nothing is permanent. Choosing a DMD is of course a big decision but there's nothing to say you can't switch from Tecfidera if it doesn't work out.