Last reply 2 months ago
Recently diagnosed

Hello everyone. I am 45 and have recently been diagnosed with primary progressive MS. Not felt right since the birth of my last daughter 3 years ago and just thought it was tiredness but my legs are constantly tired and sometimes feel like blocks of wood. Balance is also an issue. Its all manageable at the moment but I feel frustrated not been able to do everything I’d like to do with my kids and its all a bit scary.

Any words of advice/encouragement would be most welcome!

Thanks very much.

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d1zzy
2 months ago

Hello @cathie16 and welcome! Keep going and make the best of every day is my advice! It sounds as though you’ve got lots to keep you busy, and having a young child will definitely contribute to your tiredness as well as giving you a great focus. I am relatively new to all this, and there will be others on here who have more insight than me, but I find that staying calm and enjoying what I can do is far more helpful than stressing about what I can’t. Look after yourself and accept all the help you can. You’re in great company on here.
Dizzy


edmontonalberta
2 months ago

@cathie16

Life has restrictions. If you are short, basketball is not for you; yet there are other sports to keep you amused… 😉

Look at your MS restrictions the same way. For example, my sister was one of the last polio babies in Canada; mountain climbing was never an option for her. Yet she traveled the world, still scuba dives, skydived until an improper landing almost put her in a wheelchair, etc…

You have a young daughter after enjoying other children; you have experience to draw from. So you can’t mountain climb; so what… Your daughter will enjoy her mother, no matter what. You just need to adjust. And enjoy…


cathie16
2 months ago

Hi dizzy thank you for your advice, it’s just so nice to have contact with people who understand.


cathie16
2 months ago

@edmontonalberta what a lovely reply thank you, that’s a great perspective!!


stumbler
2 months ago

Hi @cathie16 and welcome.

Your diagnosis is too fresh in your mind for you to make any judgements about now and the future. You’re still processing what this means to you and readjusting your perspectives and re-evaluating what is, and isn’t, really important to you.

So, give yourself some time to realise the way that your life can continue.

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