Once again, I’m hoping you can help me out. I’m an MSer and a journalist who interviews for Shift.ms and also writes for the BartsMS blog (MS and alcohol, MSexism, Why our Words and Stories Matter etc). I am currently writing a piece for the Barts blog on preventing MS in those related to us. As you probably are aware, studies have shown that if you have MS – your children and family members have a slightly better chance (between 1-5%) of developing the disease as well.
Knowing this, I was interested to find out what MSers would do to help prevent this risk. I would also be interested to hear from anyone with close relatives/siblings with MS as well.
Would you tell your children they have an increased risk of getting MS?
Would you be prepared to take part in research where information about you is collected online? Would you give blood or genetic tests? Would you give info about your children? Would you allow your children to have a blood or genetic test?
How often would you be willing to provide info over time – for example twice a year? And for how long – one year, five years or even ten years or longer. What would motivate you to do this?
Finally – what sort of strategy would you do to reduce the risk of MS. For example, would you take on lifestyle changes like eating less sugar, exercising more – or taking a pill every day? Would you be happy for your children to take a pill every day?
If you want to message me directly, please go ahead. Also I will not quote anyone unless I receive their permission.
Thanks so much in advance,
PS I am the only one in my extended family with MS. I have two adult children who I hope – obviously – never get it.
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