Last reply 5 months ago
Newly diagnosed RRMS-methylprednisolone

Hi guys I have just joined this awesome group after recently being diagnosed with RRMS. Just two weeks ago after suffering with chronic recurrent uveitis for the last five years and more recently numbness, pins and needles in my right side since the end of the summer, I had my results from my MRI brain scan which confirmed the neurologists concerns of RRM . I am now awaiting an appt for my LP and blood tests. I am due to be starting a 5-day course of methylprednisolone tablets next week to ease some of the symptoms while I wait for my further tests . Has anyone been prescribed these to ease the early onset symptoms / eyes? Thank you

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grandma
6 months ago

Hi @ripple nearly all of us have been prescribed steroids (methylpred) at some point or another, it’s standard practise. It usually works (slowly in some cases) over the next 6-8 was to dampen down the symptoms you are experiencing. Don’t panic or get stressed, if it does turn out to be ms stress is the worst thing for it and can only make things worse. Take the steroids, sit back, chill out, and we’ll still be here for a natter and any questions you may have when you’ve finished the course and seen your neurologist.


ripple
6 months ago

Thanks for your reply @grandma I have had various courses of prednisolone steroids over the last five years to treat my uveitis but am new to the stronger methylpred, I’ll be pleased if it does the trick in dampening down the other symptoms ๐Ÿ™‚


stumbler
6 months ago

Hi @ripple and welcome.

A fair few of us have had Steroid treatment, when MS symptoms are impacting our quality of life.

There’s some details about Steroid treatment here :-

https://www.mstrust.org.uk/a-z/steroids-methylprednisolone

You need to understand that it’s not a quick fix. You may feel like you have superpowers are day 2 but this feeling of euphoria won’t last long. The Steroids will be working to help you recover over the following 6 – 8 weeks.

But, you must rest up to allow this recovery to take place.

And, have a packet of mints available. Steroids can leave a metallic taste.

On a general basis, this diagnosis is still new to you, so give yourself time to process this information.

Don’t trust Dr. Google. Stick with reputable websites, e.g. the MS Society, the MS Trust, etc..

And, live healthily, eat healthily and avoid stress.


mlgilber1
6 months ago

I usually get a 5 day course thru IV, but it doesnโ€™t seem to help me only makes it worse which is unusual. Now they do plasmapheresis. Hope you feel better!


sfrox
6 months ago

Hi @ripple, I too have had chronic bilateral uveitis and they used to prescribe shots of cortisone in the eye which worked really well before they diagnosed MS.

After a bad Optic Neuritis flare they gave me intravenous steroids, which made me feel better (I guess along with the ON I had been fatigued and sicker than I realized). Eyesight took a while to come back such as it is.

Hey, when you are taking steroids, it’s best to drink a lot of water and drastically cut down on salty foods. What you eat and drink can make a BIG difference in how you feel while on steroids.

Good luck and sorry you’re in this situation.

sfrox


ripple
6 months ago

Thanks all for your responses, it’s a great help and good to know what’s worked for you guys, it helps as it’s all new to me. Hope you are all doing well.
Thanks @stumbler I’m keen to steer clear of google and refer to the trust & society webpages for references on meds etc and have found the mini clips really interesting and positive too ๐Ÿ‘


rivka
6 months ago

@ripple, steroids can increase your appetite, too. I found reminding myself โ€œitโ€™s the steroids that are hungry, not meโ€ helped me not overeat at a time when eating healthy really does matter. Good luck, and tell us all how it goes for you.


ripple
5 months ago

Hi @stumbler @sfrox @mlgilber1 @grandma @rivka thank you all very much for your responses. I completed my 5-day 500mg course of methylpred – what a roller coaster ๐Ÿ™ˆ luckily I took with very big breakfasts each day to avoid feeling too sick – mints helped a lot to take the awful metallic taste away thank you!
I’ve been up and down on energy levels since, some days good some days a real struggle movement wise. Did anyone feel like their body goes into slow-mo mid-afternoon post the 5-day treatment? I won’t complain as sleep wise things are much better this week now I’m two weeks post treatment, numbness in my hands, wrists and feet continues to plague me daily so I’m taking it steady each day with work, I’m fortunate in doing a desk based job but have been finishing early where I need to when I start to feel really tired, but just taking each day as it comes. I’ve found things very up and down with energy levels, worse than before I took the methylpred, however I appreciate it’s not a quick fix and needs weeks even months to work it’s way into my system. Fingers crossed – hope you are all doing ok? x

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