Last reply 3 months ago
New to forum

Hi. I just joined the forum last night. Got my diagnosis in middle of January, so all of this is very new to me. My journey to diagnosis happen somewhat accidentially, having MRI test for another issue that revealed the MS. It does explain a few things that have happen over the last few years though. I had MRI done 15 years ago due to symptoms suggestive of MS, but that did not show it. I had been taking Tecfidera, but the GI side effects were just to much for me to handle so had to stop. Hopefully the remaining pain will soon leave!!!
I’m rambling now- just wanted to post a bit about myself as I’m new. Its nice to have somewhere to ask questions and hear others stories.
Rhona x

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3 months ago

Hi and welcome. This is a great place to get answers as we all live with this. Remember we are all different and don’t use Dr. Google

3 months ago

Hello @rhona74 and welcome. Yes, it’s such a comfort to know there are so many others out there who have gone through all of this. Your diagnosis is very new, so make sure you don’t rush your recovery in terms of your emotional health. Having a diagnosis changes our pathways a bit but the destination doesn’t have to change. You can learn to be creative and find alternative ways to plan and experience things. What will be the alternative to Tecfidera for you? For any suggestions, but the keyword in the search box to see what others have to say about things. Take care of yourself; sleep lots, eat healthily, don’t smoke and try to avoid stress at all costs, as it has a really weird and strong effect on our condition. Keep smiling! 🙂

3 months ago

Thanks for the welcomes. Thankfully, I have a few weeks before I need to consider alternatives. Just found out my Neurologist is thinking Mavenclad or Gilenya, so I need to do a bit of research on them.
The one positive since this all began is that I stopped smoking!! The worst time since my diagnosis has been the med side effects, so just trying to get back to normal from that.
Rhona x

3 months ago

Welcome Aboard!

3 months ago

That’s how my brother found out too. Thought he broke his shoulder after a fall and they discovered the MS.

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