New Here
I’m 45yo female that was full of life and energy 3 years ago, then i was diagnosed. Chances are I’ve had MS for a long time but hearing the confirmation changed me physically, mentally, and emotionally. I felt sorry for myself and I still do. I originally was put on Copaxone but the disease progressed. I have been on Tysabri for 2 years and the last 4 months I’ve felt really good. However, I’m JCV+ and my levels were 2.62 and i had to immediately come off Tysabri and transition to Tecfidera. Today was my first day. I took my morning dose, fell asleep and either had a horrible nightmare or started having serious tremors. I woke up and still don’t know Wth happened. So my new journey begins...it scares the shit out of me. Hoping this drug holds me at bay like Tysabri did. 😔
Hi @lori_ann and welcome. Your story will resonate with a fair few members. But, don't let this devalue your self-worth. You are still the same person. Good luck with the Tecfidera.
@lori_ann your profile doesn't say where you're from (so where you are being treated) if you can't have Tysabri anymore why aren't you able to have Ocrevus? Or maybe have Tysabri 6 weekly which a lot of JCV+ people are having ( I can't comment on the levels you mention as I know nothing about it) Techfidera is lower down the scale of efficacy. And if it is making you feel rough that isn't a good outcome for your Quality of Life Tech may be OKish for some time for you, but I wonder why your neurologist chose it. 3 years ago isn't long to process all that is happening for you so please be kind to yourself. It is still early days and you have had a big disappointment coming off Tysabri and feeling good. lots of luck