Last reply 2 months ago
Monthly blood monitoring

I’m due to do my blood monitoring next week (after 3rd round of Lemtada 9 months ago).

Last month my white blood cells were high (GP called but he did say that looking at previous months my results were erratic). I have not felt that I have had an infection but GP wants to keep an eye on things.

I’m doing well MS wise and only going out once a week with my 15 yo daughter to go food shopping.

I don’t want to burden the NHS at the moment with my blood tests but at the same time I know that blood monitoring is important.
I’m also worried about going to the blood clinic because of the current covid-19 crisis.

Not sure what to do.
Before I email my MS nurse, your opinions are very welcome.
Thank you šŸ˜„

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2 months ago

@elsa75 , it’s understandable that you are concerned. But, whilst there is a risk of Covid-19, there is also a risk that your bloods may show something that needs to be addressed.

It’s comforting that your GP is on the ball for looking after you.

I’d be guided by the Blood Clinic and get their advice. And, if you do go, then practice the general advice, wash your hands and don’t touch your face, etc..

2 months ago

Thank you for your advice. It was what I was thinking but it’s good to get other’s point of view.
I will go online to check appointment availability for next week and follow it up with a call to ensure all is ok to go.
Thanks again and keep well. šŸ˜Š

2 months ago

I totally understand your worry re going to blood clinic. However, I called my ms nurse on Wednesday just to find out if my assumption was correct that my scheduled appointment would be via phone instead and I was told to come the same day to a different clinic at the hospital to have my bloods taken. I was told to get dropped off, go directly to clinic do not pass go etc , check in, get bloods done and leave immediately. I was pretty nervous about going but it was ok, I was in a waiting room with 3 very elderly patients plus me all spaced apart and the nurse I saw had seen nobody until my appointment at 1:30pm. Everything was being handled very carefully but I was very glad to leave and go home. All of it made me very concerned and grateful for our great NHS staff putting themselves at risk. Good luck with your blood tests. ā­ļø

2 months ago

Thank you for your response. I have an appointment next Wednesday afternoon and the blood clinic said all ok at the moment and I will receive text updates if anything changes.
I’m so grateful to them and all the NHS who always go above and beyond. Supermarket/pharmacy workers, bin collectors, delivery people, lorry drivers, volunteers and everyone keeping things going while we can’t are also to be applauded.
I know my measly bit is to continue to work from home and be careful when I’m out but generally to stay home and take care of myself so that I don’t spread anything around or become ill and a burden to overstretched services.
Thanks again and stay safe šŸ˜‰

2 months ago

Very Well said there! Good luck and stay safe too xā­ļø

2 months ago

Hey, so Iā€™m on lemtrada as well, finished r2 about 14 months ago I think, and my nurse emailed me to say that they have decided to do the monthly monitoring once every 2 months now (due to covid). Maybe you could do the same? Iā€™m at st Thomas hospital

2 months ago

Thanks for letting me know. I’m at Addenbrookes and they haven’t said anything, not even on the app where I can view communications, results, etc.
Unfortunately I can’t leave it a month because my GP also views my results and he wants them next month to compare to this month’s as the White Blood Cell count wad higher than it should be and he was concerned.
I also don’t want to bother my MS Team at this busy time so I booked my tests next week and as long as I keep to the social distancing and hygiene rules, I should be ok.
Keep well and keep safe šŸ˜Š

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