Last reply 3 months ago
Lemtrada bloods – know your own body

Just an encouragement really to ask for tests etc when you can feel that something isn’t quite right.
I had R2 lemtrada last month and went for my first round of bloods yesterday. I had a feeling my iron was low (this happened last year around 2 months post treatment) and so I requested that an iron test was added to the list of normal bloods. As I expected it came back low so I am going to start iron tablets again. So, this is just an encouragement that often we know our bodies very well and don’t be afraid to ask for additional testing. It feels affirming to know that I do indeed know when something isn’t quite right, when often MS can be so invisible to everyone else and it’s a reminder that it isn’t ‘all in my head’ (aka anxiety) as the first neurologist I saw once helpfully told me…

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