Last reply 6 days ago
Dizziness

Hi all,
This is my first time in here. I was diagnosed in July with RRMS. I’m due to start treatment next month (Avonex). Ive had dizziness for the last 2 weeks just in my left side. Every other direction seems fine but when I look left or turn my head left, it’s like I’m drunk. I’ve left 4 messages for my ms nurse but she hasn’t called me back. Can someone please share their thoughts on this. Is it a relapse? How do I get rid of it?
Thank you

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nutshell88
1 week ago

hi and welcome
if you have dizzeness on left sude means yoir brain’s righy side is effected
im not sure if your dizzeness is sever enough to feel it even when layed down you might suffer vertigo specialy if your eye ball is moving trying to follow up
i’m gonna show you few things to do to feel better but its not a treatment if its vertigo you need steroid
* put 1 finger close infront of you as if you are saying keep pushing it untill it reach the dizziness hopefully stops
* lay on bed no pillow focus on lamp key or anything small on the wall meters away
*physio must do

*


kj33
1 week ago

@nutshell88 thank you. The dizziness is constant and yes I have it when I’m led down. I had vertigo earlier in the year but that affected my head whatever way I turned up. This feels different. I will try those tips later.
If it doesn’t go away doni need to see a physio as the doctor won’t do anything and the ms nurse is impossible to get hold of


nutshell88
1 week ago

i remember when i was in the uk there was ms support chat online
besides you may call er if it got too bad also check your blood pressure


melmel1
1 week ago

@kj33 Hi Darling I had that for 4 months on and off this year, but it was practically most days, try and rest as much as u can, stay calm I know it’s hard, you can try Serc medication to help and also motion travel tablets from the chemist, hope that helps X


melmel1
1 week ago

@kj33 and I also did some physio movements from YouTube every morning to help with dizziness x


kj33
1 week ago

@melmel1 Thank you. I will give the video a go. Hopefully it will pass soon.


ettelrahs
1 week ago

I’ve too been struggling with vertigo /dizzy spells. My last relapse affected the right side of my brain which means I feel constantly uneasy and drunk. I have been given Betahistine to help with the dizziness. I also had a 24 hour ECG just to see if it was my heart cos my heart rate was always elevated. Maybe that could be something to check out? Confirms whether it’s your MS or not anyway, which I know now, my MS is the cause of my dizziness.


kj33
1 week ago

@ettelrahs Thank you. I have an appointment with the consultant in 2 weeks so I guess I’ll have to put up with it until then. I’ve just been to the cinema and noticed I’m not just dizzy on the left but my eye just doesn’t feel right. That probably doesn’t make any sense. Feel quite emotional about it all as it’s always scary when it’s your eyes isnt it.
Thank you for messaging x


vixen
6 days ago

Hello @kj33, welcome to Shift. I guess it’s been a bit of a horrible year for you. Real pity you’ve been let down by the MS nurse, or rather, lack of. There is a symptom of MS called l’Hermittes (I think that’s how it’s spelt) but that happens when you bend your head forward, so maybe not. I guess if it’s bad, you could always go through the A and E route, that might speed up the referral process a bit. At least you’ve had some tips on here and have an appointment coming soon. All the best x


nutshell88
6 days ago

@vixin
i had l’Hermittes i hope it never returns was pure electric sensation when i was on interferon maybe before either way it was when i was at uni i guess mental body stress want good for me
after graduation all symptoms got 90% less

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